anthrobones
New Member
- Joined
- Dec 30, 2005
- Messages
- 1,142
- Reaction score
- 281
Bumping her post up
Are Betty's sisters still alive? I remember from the news article that a niece was alive. I wish we could get in touch with her and get her to post here. Perhaps she could answer questions for us, including what illness Betty had or was suspected to have that would cause them to think she would not live past her teenage years.
I am wondering if anyone has found more information about this case since last summer.
Hi,
I'm new here and just stumbled upon this thread. Just from looking at the pictures and reading Betty's description, I think that her unnamed condition is likely the Freeman-Sheldon syndrome, which was formerly known as the Whistling Face syndrome. I'm reasonably confident of this assessment, but not completely certain given the poor quality of the available pictures.
I hope I'm not stepping on any toes here, considering I'm a total newbie.
Edited to add that I think Rubinstein-Taybi syndrome is also a possibility, but the symptoms don't fit quite as well, IMO. I just wish we had more information.
I found Lela Taylor on Facebook. Is it okay to post the link? Would someone be willing to send her a message and ask her why she and the reporter didn't finish the documentary? Or if she has any new information?
Sorry to be so late replying to this..I would think it would be okay to send her a message on FB. I deactivated my account on there for a while or else I would. I plan to reactivate it but don't know when.
I did some digging into this a few months ago and found some info about the reporter, Tim King. He apparently goes to Afghanistan and other places overseas to do reporting. I almost e-mailed him, but his schedule sounded so hectic I didn't know when he would be in the States. I figured maybe he just got too busy with being a foreign correspondent that maybe the idea of the documentary was either dropped or put on hold.
I don't have a FB account at all anymore so I can't do it either.
You're probably right about him being too busy, but I wonder about Lela. Seems odd she would just drop the documentary without any indication of whether it would be finished or not.
I wonder if maybe she learned something that made her stop...a family secret or something...:waitasec: