Oh my Princess, I do understand how difficult it is for you to live with a child who has this disability. Although not from the perspective of a mom, but as a friend who loves my friends kids as though they are my own. I would fight like a momma bear for them. One friend in particular had to battle the system when her child was diagnosed and caught in that void where he was just aging out at 17 yrs when he was diagnosed with schizophrenia. The health care system had pretty much dropped him and there was no local support system that could provide support other than tell them how to cope. It's so wrong that our health system doesn't provide equal support for our kids like they do for our inmates. Makes me so mad! Anyway, she had to move to a different province which provided continued monitored support into his adulthood. Now why in the world aren't the same options available everywhere?!
One thing I did learn from her is, no matter what obstacles are presented, a child knows their best advocate is MOM. Your child and the doctors know it!
And YES, it DOES matter what you do for them even when they get angry, withdraw or turn on you! They always come back to you, they always trust that you'll fight for them, will always hear you even when you think they aren't listening. It's safe for your child to let go around you, because you are Mom, you are his/her safety net of unconditional love. And because you persevere, one day a doctor will take notice of your commitment to your child and will want to work with you and your child to help you manage this! Keep your eye on that vision while you take the day to day challenges one at a time. Remember to breathe. Remember too, believe in yourself.
There are wonderful support sites on the net. It's not enough but it does help and could offer suggestions of different avenues to try until you get the help needed for your child to manage his/her BPD.
And especially seek respite for yourself. You are important to all who love you! Remember to call on your friends...it's what friends do best...listen, stand in for you, cry with you, and just be there for you in whatever capacity you need.
Remember too, believe in yourself.
Wishing you continued strength and courage and love.
If we could live up to all the expectations put upon us, we could cure the world. I wish.
:heartbeat: