not_my_kids
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NMKs--Thank you for sharing that story. It must have been an awful experience and so confusing for a child. Your mother sounds like a textbook case. FWIW, I'm starting to think that one can't be diagnosed as it is not listed in the DSM-IV. I think that's why Oregon called it "medical abuse". Your mother, as so many others, took a very real medical issue and ran with it. I admire you greatly for having the objectivity to recognize her disorder and how it affected your life. I am so pleased that you were able to shut her down. Were you the only victim of this treatment or did she do this to others? Did she have a tendency to falsify or exaggerate her own ailments for attention? And just curious, do you happen to know if she was sexually abused or seriously traumatized as a child?
I highly recommend that you read the book, "Sickened", as it is your story to a T. Julie Gregory's mother raced from doctor to doctor looking for any possible diagnosis for her healthy daughter. Julie marginally went along with the plan as it was the only way she could get attention from her very mentally ill and physically violent mom. When she got a diagnosis and the medication or special diet to go with it, she reacted exactly as your mother did--she secretly contradicted it. When Julie was diagnosed with high blood sugar, she poured sweetened cereals and soda into her. When she was given psychotropics, they were only dispensed sporadically, which totally messed up Julie's mind and bloodwork. Julie was literally ordered to lie to doctors that the meds were taken as directed and diets followed scrupulously. On the way to every doctor's appt., Julie would be drilled as to what to say and then rewarded with sweets and attention. If she told the truth, she suffered her mother's wrath. When her father tried to step in, he was violently attacked. Julie's mom totally ruled the roost.
When I read Julie's book, I wanted to share it with every caseworker I know. If they didn't have a copy, I bought one for them. I was surprised to hear back from one man who is a certifier for DDS. He shared that while in social work classes in college, his class was shown videos from hospitals which clearly showed mothers injecting substances in IVs, etc. So, he was aware of the disease. However, I still think that most think of this disorder as one which only occurs in a hospital setting. They don't know about the abuse at home or the doctor "shopping" and the blatant lying.
There's a very disturbing twist at the end of Gregory's book. The upshot is that the disorder never goes away. The victim must remove herself or be removed or the cycle will begin again. Being that Terri Cerda's mother seems to have displayed some level of Munchausen Syndrome, I have to wonder if it can carry over to the victim. We haven't seen it at all in our child. He/she is totally healthy and rarely complains about ailments. Julie Gregory seems to have healed through her writing her stories.
I was under the impression that the disorder was primarily caused by a mother who suffered unresolved trauma and who desperately sought attention by projecting her pain on her children--typically a daughter with some mild and highly treatable illness. I'm starting to wonder if the cycle can continue if not caught and the victim treated and removed from the abusive situation.
Once again, I really appreciate you sharing your personal experience. I really wonder how many people are silent victims of this form of abuse. I'd love to see some sort of support group or forum for those who have lived through this unique type of hell. My guess is that victims/survivors could spot a case a mile off. I'm so sorry you had this experience and as always, I'm impressed with your tenacity and strength to rise above.
I have a suspicion that she also did the same to my grandmother, but I have no way to verify that. When I was 15, my grandmother perforated her bowel (I am not sure how) and required surgery for it. My mother was her next of kin. My grandmother was 88 years old and the doctors warned her that due to her advanced age, there was a good chance that she would have problems coming out from under the anesthetic. She did, and in fact, never woke up fully again after the surgery. My mother was advised that there was no significant brain activity and that my grandmother was being kept alive by the machines and that it was only her body that was alive. Her mind was gone. My mother, who has always been a bit utilitarian, did not disconnect the machines until the insurance refused to pay any longer. I have my suspicions that while she left my grandmother on those machines, she was not making her sicker, but was rather enjoying the attention and sympathy from those that say her as a dedicated daughter. I feel she used my grandmothers misfortune to make herself feel and look better to others.
She didn't exaggerate about her own health when she was running me to every doctor in town, but she does now. A tiny cyst on her ovary became a huge cancerous lump that might require a hysterectomy. A minor bout of bronchitis became emphysema. A rather nasty but routine bout of stomach flu became stomach cancer, yet she was never treated for any of the more serious conditions listed above.
I don't believe that she was sexually abused as a child, although I don't know for sure. She wouldn't tell me, even if I asked. She was traumatized. She was a rather difficult teenager, and at the age of 14, my grandmother pronounced her a lost cause and placed her in a girls home, where they were allowed to prescribe and test medications. I believe that had a large part of it. One of the few claims that she has been able to prove to me is that she was one of the first test cases for the drug now known as Ritalin, and if you ask me, that had a part in her later life nueroses and psychoses.
I haven't read thebook, but I will certainly look into getting it. Thank you, I hadn't even heard of it.