Found Alive UK - Ashya King, 5, Southampton, 28 Aug 2015

[Little Jedi]

http://www.portsmouth.co.uk/news/sc...-council-blocks-to-ashya-king-probe-1-6303251

Thanks
For some reason I was googling 'Ali Campbell' & only getting hits for UB40 lol

 

[Little Jedi]

Parents do tube feedings at home all the time. Some older patients even do their own! You can even run on nightly home dialysis as long as there is one trained family member there to do it.

Yes this ^^

For many of us who knew nothing about the feeding tubes Xina_Marie explained wonderfully to us very early in the thread.

I think thanks to understanding better lead many like myself to question the urgency/severity of this particular case.

 

[Little Jedi]

Does anyone know if this proton beam treatment is experimental or a new treatment for this particular type of cancer?

:seeya:
Apparently it's quite 'established' although still a new treatment.

I had never heard of it before but there's a few clinics in the U.S. which is where UK patients are currently sent.
The go-ahead has been given for a couple to be built in UK with future plans for more.

This specific one in Prague has an excellent reputation by all accounts.

This link gives a great, simple & easy to understand explanation etc. for more details

http://scienceblog.cancerresearchuk...to-the-uk-but-what-does-it-mean-for-patients/

Sooooo hoping this works for little Ashya :tantrum:

 

[Little Jedi]

Entrepreneur to make Ashya King treatment accessible in the UK

British medical pioneer is developing a cheaper form of proton beam therapy to help cancer patients on the NHS

{snipped}

The need for this specialist treatment is under the spotlight following the story of the King family who took their five-year-old son from Southampton Hospital when they couldn’t access proton therapy for him.???

^ That's a new one ^ :wink:

http://www.telegraph.co.uk/finance/...shya-King-treatment-accessible-in-the-UK.html

 

[ZaZara]

ANGER ABOUT EU ARREST WARRANT

Janice Atkinson, member of the Europoean Parliament for UKIP sends an angry tweet:

Janice Atkinson MEP ‏@JaniceUKIP

No EU Arrest Warrant issued for murderer Arnis Zalkalns, yet this pernicious device was used against #ashyaking parents


BBM


(Arnis Zalkalns, 41, is chief suspect in the disappearance of London teenager Alice Gross, 14. Alice disappeared on August 28. Zalkalns, a convicted murderer originally from Latvia, has not been seen since September 5.)

 

[Little Jedi]

anger about eu arrest warrant

janice atkinson, member of the europoean parliament for ukip sends an angry tweet:

Janice atkinson mep ‏@janiceukip
no eu arrest warrant issued for murderer arnis zalkalns, yet this pernicious device was used against #ashyaking parents[/b]

 

[ZaZara]

View attachment 59703

More about the European Arrest Warrant and the lack thereof in the case of the alledged murdere of a young teenager:

http://www.theguardian.com/uk-news/...alkalns-met-police-no-european-arrest-warrant

The Met says it does not have sufficient evidence against Zalkalns to meet the threshold to get a European arrest warrant. While detectives have suspicions about him, they have no evidence that he committed an offence.

If the Met police wished to seek a European arrest warrant they would have to approach the Crown Prosecution Service(CPS), which would handle the request with its Latvian counterparts.

According to the CPS website, European arrest warrants can only be granted for someone who is to be prosecuted or sentenced, or to complete a sentence.

Were Zalkalns found in the UK, police do not have enough evidence to charge him for any offence.


BBM


The parents of Ashya King will be surprised if they read this......
Also, Julian Assange in his room at the Colombian embassy must be surprised.
His extradition to Sweden was granted by the High Court on the basis of an EAW and because the Swedish Prosecutor 'wants to question him'


:secret:

 

[Lilibet]

Eight Days In, Ashya King's Therapy Proceeds 'According to Plan'

Proton center’s spokeswoman says it is still too early to make a prognosis; 23 radiations remain
Prague, Sept. 23 (ČTK) — The proton therapy of five-year-old Ashya King, a Briton who suffers from brain tumor, is proceeding according to plan, but it is too early to make any prognosis, Prague Proton Centre spokeswoman Iva Taťounová told the Czech News Agency today.
Pavlína Danková, spokeswoman for the Prague–Motol Teaching Hospital from where the boy is transported to the Proton Centre on a daily basis, confirmed that no complications have occurred.

The boy underwent the first treatment session Sept. 15. Today he had his seventh session. In total, 30 radiation sessions have been planned for him. The proton therapy lasts six weeks.
Taťounová said the boy's motor activity has been improving, and he has been rehabilitating. This improvement occurred as more time has passed from an operation Ashya King had undergone when he was still in Britain, she said.

http://www.praguepost.com/prague-ne...hya-king-s-therapy-proceeds-according-to-plan

 

[Little Jedi]

According to the CPS website, European arrest warrants can only be granted for someone who is to be prosecuted or sentenced, or to complete a sentence.

:secret:

Tut Tut Tut......

So in respect of this ^^ has any 'official' explanation been given why one was issued so quickly for the Kings ?
Or.....
A full public apology

 

[Ellmau]

Presumably they were planning on prosecuting them, even if they changed their minds later.

 

[Supernovae]

^Exactly this. Or rather, the police were open with the fact that they might not ultimately pursue a prosecution, but at the time they had or appeared to have the evidence to support one if necessary. The crime the EAW was issued for was "exposure" contrary to section 1.1 of the Children and Young Persons Act 1933 under the section heading "Prevention of Cruelty and Exposure to Moral and Physical Danger":

http://www.legislation.gov.uk/ukpga/Geo5/23-24/12

"If any person who has attained the age of sixteen years and [F1has responsibility for] any child or young person under that age, wilfully assaults, ill-treats, neglects, abandons, or exposes him, or causes or procures him to be assaulted, ill-treated, neglected, abandoned, or exposed, in a manner likely to cause him unnecessary suffering or injury to health (including injury to or loss of sight, or hearing, or limb, or organ of the body, and any mental derangement), that person shall be guilty of a misdemeanour..."

Now they had a pretty good prima facie case. The medical evidence at the time was that he needed to be in a hospital (and that hasn't been challenged in and of itself, since), he wasn't in a hospital because they had taken him out without making arrangements for him to be transferred to another one immediately, it was known it was them that did it because he was in their care at the time and they were seen on CCTV taking him onto the ferry. QED. Now it would later turn out that they had taken some significant steps to mitigate some of the risks to him by, unbeknownst to anyone, purchasing feeds and a cable for the feed pump online, having left the original behind on the ward. This was the ostensible reason for withdrawing the EAW, although political considerations and the fact that it wouldn't at that point have served any useful purpose, probably also came into it. Had they chosen to pursue it I'm sure they could have made the case based on the residual risks to him of the journey, at that point in time, and in the manner it was conducted.

With Zalkanis, in contrast, the problem is that they only have weak circumstantial evidence that he has done anything at all in relation to Alice Gross, let alone exactly what that something may have been. Now, he looks pretty good for it and they're right to pursue those suspicions: he's a convicted murderer with an allegation of indecent assault against a 14 year old, he was provably in the area at the time she was last seen and has since disappeared himself... but that doesn't get you to the point of being able to charge him and with what, exactly? Murder? Abduction? Something else? As yet they don't have prima facie evidence for any of those scenarios.

 

[ZaZara]

BREAKING: NHS ENGLAND TO PAY FOR TREATMENT ASHYA



Sky News Newsdesk ‏@SkyNewsBreak

NHS England to pay for treatment of five-year-old cancer patient #AshyaKing in Prague



BBM


:happydance::happydance::happydance::happydance:

 

[ZaZara]

U-TURN IN FUNDING OF ASHYA KING TREATMENT

The Mirror reports:
http://www.mirror.co.uk/news/uk-news/ashya-king-u-turn-brain-tumour-4330203

Brain tumour boy Ashya King is to have his pioneering treatment in Prague funded by the NHS, the Daily Mirror can reveal.

The five-year-old’s family had had their application for proton beam therapy controversially turned down by health chiefs after British doctors recommended conventional radiotherapy.

But in a major U-turn tonight, NHS England reversed its decision and agreed to foot the entire bill for his treatment. It could cost up to £100,000.

In a statement, an NHS England spokeswoman confirmed to the Daily Mirror: “Our thoughts are with Ashya and his family as he begins follow-on radiotherapy.

“Now that Ashya is in Prague, it is clearly best that Ashya continues to be treated uninterrupted so the NHS has agreed to fund this care, as requested by his parents, in accordance with relevant European cross-border arrangements.

“We all join in wishing him well, and greatly hope he makes a full and successful recovery.”

BBM

"Perhaps if they'd done this in the first place, a lot of aggravation avoided!"

 

[Ellmau]

Although one wonders who won't get funded as a result.

 

[ZaZara]

RECIPROCAL HEALTHCARE AGREEMENTS EU BASIS FOR NHS FUNDING - MORE CHILDREN MAY BENEFIT


The Guardian explains:
Therapy to be funded under EU’s reciprocal healthcare arrangements after case was originally turned down by panel
http://www.theguardian.com/uk-news/2014/sep/26/nhs-pay-ashya-king-proton-therapy-treatment



NHS England has agreed to fund proton beam therapy for Ashya under the reciprocal healthcare arrangements that exist within the EU, on the basis that the five-year-old needs a course of radiotherapy as a matter of urgency and, if he is to recover, he must have it now in Prague, where he has been taken by his family.

(...)


The U-turn by NHS England, because of the application within the EU rules rather than normal NHS protocol, may make other parents who would prefer proton beam therapy to standard radiotherapy for their child, seek to take them abroad.


BBM

 

[ZaZara]

Although one wonders who won't get funded as a result.

Quite the opposite possibly. The clinic in Prague is over 50% cheaper than the centers in the US where the NHS usually sends it's patients.
http://www.websleuths.com/forums/sh...re-Feeding-Tube-Stops&p=10926977#post10926977

The Independent reports:
http://www.independent.co.uk/life-st...c-9715537.html


Vaclav Lastovka, one of the co-founders of the proton centre, said that he could treat British patients for less than half the price of the treatment offered by American proton centres, but has not received any meaningful response from NHS England despite repeated phone calls, emails and letters.

“We have made an offer to the NHS to treat British children with proton radiation for two and half times less than the cost of treatment in the US. We can treat children from the UK now and nobody has to wait until the UK has its own proton therapy centres,” Mr Lastovka told The Independent through an interpreter.

 

[Little Jedi]

U-TURN IN FUNDING OF ASHYA KING TREATMENT

"Perhaps if they'd done this in the first place, a lot of aggravation avoided!"

:loveyou:

 

[Ellmau]

Still quite a bit more expensive than the other form of treatment the family didn't want in Southampton. I don't begrudge it if it genuinely does give the child a *better* prognosis; but I have more mixed feelings if it doesn't, and the evidence doesn't seem to quite hold up.

 

[Supernovae]

This raises a number of questions. I can't find the original NHS England statement, so I can't work out for sure what exactly is being funded or whether there has been a degree of Chinese whispers in the media. It may be that they're paying for his ancillary care in the Czech hospital where he's receiving totality of his treatment not provided by the Proton Therapy Centre, which, as the name suggests, only provides that specialist therapy. The fact that the application for reciprocal funding would, I presume, have to have been made by the Czech Government, would tend to support that, if the funding related to one of their institutions rather than a private clinic. Either way, it begs the question of what happened to the money they ostensibly had to fund this, as they were supposed to be entirely self funding and had to present costs plans to the courts to prove it. There's certainly a degree of moral hazard in this decision.

 

[ZaZara]

CANCER DOCTER TREATING ASHYA KING TOLD PARENTS ONLY TREATMENT AVAILABLE ON NHS WOULD LEAVE HIM WITH DISABILITIES FOR THE REST OF HIS LIFE





Daily Mail exclusive interview with parents Brett and Naghmeh King:
http://www.dailymail.co.uk/news/art...ailable-NHS-leave-disabilities-rest-life.html

One doctor was said to have told him: ‘If you continue with these questions your rights to make decisions about Ashya will be taken away from you.

‘We will apply to the family court to have your parental rights removed and then we will give him any treatment we want.’

Mr King, a property developer from Southsea, Hampshire, said he then asked a radiologist at the hospital and was told cancer treatment decisions were taken on the basis of ‘survival rates’, not the patient’s quality of life afterwards.

The radiologist told him: ‘If you’re asking me about quality of life, proton is superior.

‘With radiotherapy, your son will get secondary tumours, have hearing problems, growth problems and special needs for the rest of his life.

‘Children pay a heavy price for survival under normal radiotherapy.’

Faced with such a grim forecast for their child’s future, Mr and Mrs King said they felt they had no option but to take Ashya to Prague for treatment.

BBM


Much more at link. Daily Mail will publish a moving and shocking interview serialised this week.