Family battling Children’s Hospital to bring teen home for Christmas #2

[Linda7NJ]

Wait what??? Could the family now be claiming that using a feeding tube, which they approved and actually demanded, is force-feeding?

I have not read that any of those other claims have been substantiated.



I do know that the media would have jumped on those shocking allegations and written about them extensively IF there was any indication that they were true. That, as critics of the press so often love to claim, would really "sell papers." But it has not happened, and that is likely because the claims are false.

Her parents went as far as to claim they had witnesses to this abuse...made more threats of yet even more lawsuits.



http://www.myfoxboston.com/story/25...side-state-facility-housing-justina-pelletier

The Pelletiers told FOX 25’s Crystal Haynes that they're prepared to take the facility itself to court.

“We have witnesses and they will be taken to court and the full extent of the law will incur on them,” said Lou Pelletier, Justina’s father. “Just like DCF, just like Boston Children’s, any state employee. Any state employee that has done harm; has witnessed harm is as much a part of the problem as anybody else.”

Wayside denied any misconduct. In a statement to FOX 25, a spokesperson for the facility stated that “Wayside is confident that all the care we provide is appropriate and meets the medical and mental health needs of the young people under our supervision. We strongly deny any allegations of abuse and believe that any third party review of our care would support this position.”

But Linda Pelletier, Justina’s mother, said Justina isn’t making it up.

“My daughter has never lied in her life. She's petrified. And I have inside sources,” Linda said. “People have come forward and seen it with their own eyes. So if they want to fight that they can go to court.”


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[Linda7NJ]

Bottom line..the parents are very clearly the problem in this situation. IMO if it weren't for them and their over the top ridiculousness she would have been home long ago.





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[Linda7NJ]

No, they aren't claiming that using a feeding tube is force feeding.

Where are the police reports and witness statements?




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[sweetmom]

Her parents went as far as to claim they had witnesses to this abuse...made more threats of yet even more lawsuits.



http://www.myfoxboston.com/story/25...side-state-facility-housing-justina-pelletier

The Pelletiers told FOX 25’s Crystal Haynes that they're prepared to take the facility itself to court.

“We have witnesses and they will be taken to court and the full extent of the law will incur on them,” said Lou Pelletier, Justina’s father. “Just like DCF, just like Boston Children’s, any state employee. Any state employee that has done harm; has witnessed harm is as much a part of the problem as anybody else.”

Wayside denied any misconduct. In a statement to FOX 25, a spokesperson for the facility stated that “Wayside is confident that all the care we provide is appropriate and meets the medical and mental health needs of the young people under our supervision. We strongly deny any allegations of abuse and believe that any third party review of our care would support this position.”

But Linda Pelletier, Justina’s mother, said Justina isn’t making it up.

“My daughter has never lied in her life. She's petrified. And I have inside sources,” Linda said. “People have come forward and seen it with their own eyes. So if they want to fight that they can go to court.”


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But no lawsuit has been filed, has it? Just more bluster from the family, I fear. I am surprised, if they really truly believed Justina was being physically harmed, that they did not call 911 or immediately file some kind of suit.

 

[Donjeta]

The judge thought there was legal ground to take Justina into DCF custody.

 

[CathyinTexas]

JMO it is not only about the rights of the parents and what they'd like or wouldn't like to do, it's about what's good for Justina and what will have to be done to get her home.

I think it's probably been pretty clear all along that the fastest way of getting Justina home is not to demonstrate and agitate people on Facebook but to submit to a home investigation and comply with the therapies and visitation arrangements etc. DCF is usually not going to let children go because the parents shout louder and louder but there will be conditions that the parents will have to comply with.

The MA DCF didn't visit their home, the CT DCF did at the request of DCF MA. The first 2 times they cleared them, good grade. The judge said that the 3rd time they said something negative. Lou said they weren't going to get involved either way, not a true negative finding. I believe him. The irony is that Justina wasn't in the home all that time when it was done. They made all visits once a week for an hour under armed guard. They have complied. This same DCF allowed children under their watch to die. There are 136 missing. They complain of not enough funds, but the amount of money they have spent on this is outrageous.

 

[Linda7NJ]

The MA DCF didn't visit their home, the CT DCF did at the request of DCF MA. The first 2 times they cleared them, good grade. The judge said that the 3rd time they said something negative. Lou said they weren't going to get involved either way, not a true negative finding. I believe him. The irony is that Justina wasn't in the home all that time when it was done. They made all visits once a week for an hour under armed guard. They have complied. This same DCF allowed children under their watch to die. There are 136 missing. They complain of not enough funds, but the amount of money they have spent on this is outrageous.

I an unwilling to put a price tag on the cost of protecting a child from medical abuse. She deserves to be protected. Whatever the cost.



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[CathyinTexas]

She may have a medical component to her overall condition. It's not "all" somatoform, or "all" medical diagnoses. They co-exist.

And oh, yeah-- there are teens with worse somatoform disorders. There are documented cases where kids exhibited symptoms of paralysis, seizures, global amnesia, comatose states, etc. for prolonged periods, with no medical causes.

A medical professional really believes that seizures are not caused by medical condition, comatose states? It shows me that the medical profession can't always find the cause and then blames it on the patient, ie. all in their head.

 

[jjenny]

Bottom line..the parents are very clearly the problem in this situation. IMO if it weren't for them and their over the top ridiculousness she would have been home long ago.





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If you think they are abusing her, why should she be home?
Unless you think parents being "over the top" is enough to remove their child.
It's a free country. If one wants to be over the top, it's ones right.

 

[jjenny]

I an unwilling to put a price tag on the cost of protecting a child from medical abuse. She deserves to be protected. Whatever the cost.



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What would be the abuse? Subjected to republican ideas?

 

[annahanna]

..... You should consider yourself very lucky, because of what you have described about your daughter's case and history it could have been you this happened to like it has hundreds of others LIKE you.

WOW! I don't know if that is more offensive or presumptuous on your part. I have given very small amounts of information about my family's medical struggle to exemplify why I know that much of what the Pelletier parents say is absolute malarkey and why I now believe that they are - at a minimum - giving off every appearance of being medically abusive to their youngest child.

I have never revealed my child's sex, diagnosis, or symptom history. I did reveal that we did see Dr Flores a few times for a motility problem and that he referred us to a doctor and hospital in another state because my child's problem required a surgery that is not performed at BCH - or in fact in New England. I did reveal that my child has been hospitalized at BCH - along with a number of other hospitals. I did reveal that my child has a rare disorder that originally stumped a number of doctors. I did reveal that testing for somataform was done 6 years ago.

There is NOTHING in any of that that would identify my child - even to our many medical providers. There is NOTHING in anything that I have written ever that would indicate that we would raise any red flags for medical child abuse. We have a healthy and appropriate relationship with my child's many medical providers. We like and trust them and trust that any referral they made would be made with our child's health and well being in mind. We would believe that any replacement they selected to take over our child's care in their absence would also be made with professionalism, honesty, and care. They have referred us to specialists in their own hospitals and, at times, in other hospitals and even in other states. We regularly travel by plane to see our physicians as many families with rare disorders do. We have certainly shared frustrations and joyfully celebrated successes with our doctors and other caregivers. We have asked questions, shared information, and respectfully disagreed over the years. We have laughed and cried, but never once have we (or they) erupted into shouts, obscenities, name calling, professional slander, personal slander, or the involvement of DCF. We do not give off the weird, groupie-like, slavish devotion to a doctor, hospital, or diagnosis that has been abundantly on display in this case. We are not abusive to our child OR our child's caregivers. When a doctor questioned early on if the symptoms could be emotional or exaggerated, we sought out an expert opinion and paid for extensive testing (a lot can be done in 5 or 6 hours when payment is not standing in the way.) Honestly, it would have been preferable if the problem was psychiatric in nature. It would have been much easier to deal with and treat!

I certainly know parents that have been considered for - and cleared of - medical abuse. One of those was at BCH. They co-operated with BCH and DCF, proved their innocence, and were cleared of any wrong doing without ever losing their child. The Pelletiers could have taken a lesson from them - or perhaps, just perhaps,they have something to hide???

 

[Linda7NJ]

A medical professional really believes that seizures are not caused by medical condition, comatose states? It shows me that the medical profession can't always find the cause and then blames it on the patient, ie. all in their head.

This IMO is why medical professionals with extensive medical training in conjunction with other medical professionals with extensive medical training make the diagnosis ...not the parents or random people with opinions on the internet.


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[CathyinTexas]

Both parents have demonstrated that they are extremely resistant to anything related to mental health care and diagnosis, going back years. I think that is a significant obstacle to any attempts at reunification.

Personally, I think at this point, it's very possible Justina will turn 18 as a ward of the state.



http://www.bostonglobe.com/metro/2013/12/15/justina/vnwzbbNdiodSD7WDTh6xZI/story.html

Linda didn't want to load a feeding tube or didn't want a feeding tube put in that the doctors wanted apparently, which goes to show it was the medical professionals over medicalizing her if that is the case. Doctor's have egos and they don't like the patient or guardians questioning them. I don't think they should have the option of parentectomies which is term they use when they destroy families. There should be hard evidence, video for example of a parents harming a child medically. It shouldn't be subjective by observation of the patient/caregivers.

 

[jjenny]

This IMO is why medical professionals with extensive medical training in conjunction with other medical professionals with extensive medical training make the diagnosis ...not the parents or random people with opinions on the internet.


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And what do you do if these medical professional with their extensive medical training can't agree on a diagnosis? Cut the child in half?

 

[Linda7NJ]

If you think they are abusing her, why should she be home?

Unless you think parents being "over the top" is enough to remove their child.

It's a free country. If one wants to be over the top, it's ones right.

It is their right to be as ridiculous as they want. When lies & false allegations effect the health of their daughter, the state must intervene to protect her.imo


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[Donjeta]

The MA DCF didn't visit their home, the CT DCF did at the request of DCF MA. The first 2 times they cleared them, good grade. The judge said that the 3rd time they said something negative. Lou said they weren't going to get involved either way, not a true negative finding. I believe him. The irony is that Justina wasn't in the home all that time when it was done. They made all visits once a week for an hour under armed guard. They have complied. This same DCF allowed children under their watch to die. There are 136 missing. They complain of not enough funds, but the amount of money they have spent on this is outrageous.

The funds being so low, don't you feel the least bit curious why the armed guards were thought necessary? Normally parents who comply do not need armed supervision on their visitation and DCF doesn't want to pay for it just for the heck of it. So did they hire the guards at great cost just to annoy Justina and her parents for no reason at all? Or did the parents "comply" in such an aggressive manner that it was thought necessary for safety?

 

[jjenny]

The funds being so low, don't you feel the least bit curious why the armed guards were thought necessary? Normally parents who comply do not need armed supervision on their visitation and DCF doesn't want to pay for it just for the heck of it.
just to annoy Justina and her parents for no reason at all? Or did the parents "comply" in such an aggressive manner that it was thought necessary for safety?

Parents never claimed they complied with BCH's demand to treat her for somatoform. They wanted to take her out of BCH and into Tufts.
So I presume the guards were there to prevent parents from doing just that.

 

[Linda7NJ]

And what do you do if these medical professional with their extensive medical training can't agree on a diagnosis? Cut the child in half?

Read annahanna's post above.


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[Linda7NJ]

You are missing the fact the reunification plan was put into place and submitted to them 15 months after she was taken. It is supposed to be done in the beginning. So what were they supposed to comply to. They were told they could only see Justina 1 hour a week under armed guard and they complied.

Link please


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[CathyinTexas]

WOW! I don't know if that is more offensive or presumptuous on your part. I have given very small amounts of information about my family's medical struggle to exemplify why I know that much of what the Pelletier parents say is absolute malarkey and why I now believe that they are - at a minimum - giving off every appearance of being medically abusive to their youngest child.

I have never revealed my child's sex, diagnosis, or symptom history. I did reveal that we did see Dr Flores a few times for a motility problem and that he referred us to a doctor and hospital in another state because my child's problem required a surgery that is not performed at BCH - or in fact in New England. I did reveal that my child has been hospitalized at BCH - along with a number of other hospitals. I did reveal that my child has a rare disorder that originally stumped a number of doctors. I did reveal that testing for somataform was done 6 years ago.

There is NOTHING in any of that that would identify my child - even to our many medical providers. There is NOTHING in anything that I have written ever that would indicate that we would raise any red flags for medical child abuse. We have a healthy and appropriate relationship with my child's many medical providers. We like and trust them and trust that any referral they made would be made with our child's health and well being in mind. We would believe that any replacement they selected to take over our child's care in their absence would also be made with professionalism, honesty, and care. They have referred us to specialists in their own hospitals and, at times, in other hospitals and even in other states. We regularly travel by plane to see our physicians as many families with rare disorders do. We have certainly shared frustrations and joyfully celebrated successes with our doctors and other caregivers. We have asked questions, shared information, and respectfully disagreed over the years. We have laughed and cried, but never once have we (or they) erupted into shouts, obscenities, name calling, professional slander, personal slander, or the involvement of DCF. We do not give off the weird, groupie-like, slavish devotion to a doctor, hospital, or diagnosis that has been abundantly on display in this case. We are not abusive to our child OR our child's caregivers. When a doctor questioned early on if the symptoms could be emotional or exaggerated, we sought out an expert opinion and paid for extensive testing (a lot can be done in 5 or 6 hours when payment is not standing in the way.) Honestly, it would have been preferable if the problem was psychiatric in nature. It would have been much easier to deal with and treat!

I certainly know parents that have been considered for - and cleared of - medical abuse. One of those was at BCH. They co-operated with BCH and DCF, proved their innocence, and were cleared of any wrong doing without ever loosing their child. The Pelletiers could have taken a lesson from them - or perhaps, just perhaps,they have something to hide???

They should have been allowed to take their child back to Tufts in the first place and none of this would have happened. Maybe it isn't the same as yours or others but still there was no reason for it to happen in my opinion. I do not believe they should bow down to these people who overstepped the boundary. Although, they did for 9 months. Also, they have lawyers who are counseling them to do exactly what they are doing.