Who says they knowingly helped perpetuate such a fraud? I do think the one who wrote the letter exceeded his professional bounds but I think he was convinced. I mean did the doctors in every case of Munchausen by proxy knowingly help the parents perpetuate a fraud?
Again, Kristine Barnett is very convincing. Her Amazon reviews for her book, are an average 4.7 out of 5. And she has endless stellar reviews from places like the Washington Post. New York Times. She’s convincing.
Except to some.
What’s incredible is that most bought that she was able to do the following, all at the same time:
- Spent hours with her autistic son giving him attention in hours of daily therapy sessions.
- Voraciously and extensively researched her son’s condition, reading multiple text books and articles.
- Took care of her other son who was a severely ill infant who had major breathing problems. She never left his bedside and never slept.
- Ran an in-home daycare for special needs kids.
- Created a community night school for kids with autism.
- Transcribed a story one of her daycare charges told her, that she recorded on her cell phone, printed it, bound it, gave it to the child, and then every day found a new picture for the child to create a story from.
Really? And yet multiple people including professional book reviewers read this nonsense AND BELIEVED IT.
So yeah. A person like this can fool professionals. Especially if they only see and hear from her in select settings.
But I’m less interested in who she fooled and how then in those who saw through her and what they had to say. It’s fascinating to me. They describe constant exaggeration. Constant m, incredible tragedies. Constant heroism. Excessive narcissism. When I researched this family at the beginning of this case that all really stood out to me:
So
nia Greenrated it
it was ok
almost 6 years ago
SNIPPED
The book, however, is disappointing on many fronts. The writing isn't great, but I'm willing to forgive some of that when it is an autobiography, written by an amateur writer. The main problem though is that the book misses some points and oversells the story and its characters, and in doing so, lost me as a reader who started out very engaged. By the end, I was rolling my eyes.
As the writer tells the story, Jake got a very drastic diagnosis at a very young age. At no point does she even question whether, perhaps, the initial diagnosis itself might have been wrong. Why not? Instead of proving how they overcame the diagnosis, perhaps she could have discussed what must have occurred to them at some point: that Jake, like many other kids on the spectrum, might not be as low on the autism scale as was initially thought. The writer adds a lot of drama to the story without resolving some of the issues that her readers are given. Her middle son, for example, seems to have a very serious medical issue, but we are never told whether that was resolved. She herself gets a serious diagnosis as well, but we are never really told how that affects her life.
The main problem for me is the oversell. The mom doesn't just run a daycare, she runs what sounds like the world's BEST daycare. The office workers at the testing facility where Jake takes some tests are ECSTATIC with his results. People are not middle class or lower class in this book: they are either VERY POOR or VERY RICH. And here is the oversell that lost me completely: Jake enrolls in college, starts tutoring other students, and doesn't just feel happy when they succeed. He and the student he helps at one point WEEP with joy. I don't buy it. No kid weeps with joy at much of anything, and even if such a kid existed, I think odds are that it would not be a kid on the autism spectrum.
Meganrated it
liked it
about 6 years ago
Well. The author is not a career author or writer, she was a mom with an interesting story to tell, so I'll give her that. That being said...
SNIPPED
I was also flat out baffled and annoyed by some of the decisions she made. Their house is flooded and ruined, and they still have to sadly pay the mortgage on it. She is lamenting on how broke they are, which obviously sucks, but then they go and buy a brand new, amazing house. That was never really explained. Is she just a dip? I am only 26 but that seemed insane to me. Obviously that's her life choice so whatever, but definitely had me re-reading that line, then sitting there in stunned disbelief.
She was also a little self-righteous. There were times she brought up good qualities of hers or her family's and then would immediately do this sheepish, falsely humble thing. She kept dropping the fact how kind and generous they are. For example, they don't like to give gifts at Christmas and really focus on giving to the poor. I wouldn't begrudge anyone that. I think that is all an example we should aspire to. But I kind of feel the second you bring it up, it becomes less about the kind act and more about you. It would be one thing if these stories served a point to the narrative or if she was trying to educate others how to help a certain charity, but sometimes they seemed just completely mentioned for no reason other than to make her look better.
Kev
in Farrellrated it
liked it
almost 6 years ago
Don't let the 3 star rating discourage you from reading this one...
SNIPPED
The Rating.
I wanted so much for this story to be about Jake Barnett - Autistic Genius. It was but, it was about much more. The story included how his Mom and Dad worked constantly to help find Jake when he was almost lost within himself. So much of the story was about the obstacles that the entire Barnett family faced during Jake's Childhood. I agree that this is an important part of the story and could not be left out. However, early in the book I kept getting the sense that the story being told seemed out of proportion. I felt that I was being told a tall tale from time to time but I moved on. Then on page 172 the chapter titled Dark Times described in detail how desperate things were for all families in Indiana during the start of the recession. The author (Kristine Barnett) describes a world that did not fit the facts. She is writing about Indiana in 2008. A lot of people were out of work - that is true, still is. Her husband, Mike, lost his job and so did many in their neighborhood. Barnett claimed that she believed that almost 50% of the people in Indiana were out of work. Not actually true. Then there was this paragraph on page 174:
" . . . Many people around us burned old tables and chairs for heat. A lot of people didn't have electricity, and the people who did weren't using it. Every house was dark. There were no lights on anywhere. I remember walking through Walmart, the aisles cleared of everything except necessities: camping gear, coffee, fire logs, lighter fluid, water, cheap electric blankets for those without heat - and beer. The store didn't bother to stock anything else. It looked like an army surplus store."
This one paragraph was evidence enough for me to understand that Barnett writes through her own eyes. I am certain that this is what her world looked like in 2008 from her point of view. The rest of us could buy anything we wanted in Walmart because it was all there on the shelves. I don't know of anyone who burned furniture. I live in Indiana in a neighborhood just like the one she described as her own. It was at this point in the book that I realized that the author is such an emotionally charged person that she can not simply state the facts with accuracy. Accuracy would not convey the emotion that she has in each memory, so she shapes the story to carry the emotions as well as the facts.
Kelly rated it
did not like it
over 5 years ago
Shelves: gave-up-on
When I started this book I really liked it. However halfway through I got so tired of hearing her give herself pats on the back I couldn't believe anything else she wrote. One chapter she wrote about how multiple children came to her and because they had been problems for their parents, within minutes she could see with their spark and changed their lives forever.
I'm sure she was an incredible woman when it came to what she was doing, but I find it hard to believe that only after 10 minutes with an autistic 11-year-old she was able to do something for him that all the experts and his own parents could not.
I decided I did not want to second guess each word she wrote and quit the book.
The Spark: A Mother's Story of Nurturing Genius by Kristine Barnett
Ughh just ughhhhh
May 6, 2018
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Format: Kindle Edition
The writing isn’t great but I’m willing to overlook that except she’s so boastful and braggy. I don’t think i can finish the book.
Had to Put it Down
May 24, 2014
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Format: Kindle Edition
As the mother of an autistic 12 year old boy I was excited to read this book. However I got tired of reading about how this super mom could achieve all this greatness while all these terrible trajedies surrounded her . It came off as self indulgent instead of the story of her incredible son. Clearly this boy is a genious and without his mothers support his brilliance may have stayed hidden or more probably delayed in appearing.. But after a few chapters I could not take any more of the authors self aggrandizement.
I would love to read the true story
June 30, 2015
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Format: Paperback
We all love miracle - success stories but this is too much. It would have been very interesting to know the true story. (I read about a third of a book - really not one meltdown of an autistic kid?).
More about the mother than the son
January 27, 2018
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Format: Kindle Edition
It was hard to get past the feeling that the mother is a major egomaniac. The book felt like it was mostly about her, not her son. Much of it felt impossible. Time frames etc. I really find myself not caring at all after finishing it.
Tedious
January 28, 2018
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Format: Kindle Edition
The always-right mother tells us how to raise our kids while she lauds her son's accomplishments. It was too much for me.
I can't finish this book
August 7, 2014
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Format: Paperback
I am about 75 pages into this book and I have to stop reading it. I am literally becoming ill from the ridiculous super-woman theme that is ratcheting up further with each subsequent page. Having had a child with Down Syndrome who lived to 14 months of age with a sever seizure disorder (infantile spasms), I know what life is like when days are filled with unfruitful therapy sessions and a child who is in pain and has lost all her emotions. I simply do not believe this mom could have given Jake the type of attention she says she gave him, researched her son's condition to the extent she did, plus cared for her severely ill infant Wesley, plus ran a daycare from her home. The hours do not exist in the day to do what she says she did. What clinched it for me is that she claims she stayed up transcribing a story one of her 8-year-old daycare charges told her that she recorded on her cell phone, took the time to print it out and bind it into a volume, and give it to the child, and then every day found a new picture for the child to create a story from. When could this have happened? She was already not sleeping a wink because she had to stay by Wesley's bedside because of his breathing issues and because she was reading all kinds of textbooks and articles about autism that were strewn about her bedroom. The pace that she claims to have kept up would have resulted in a breakdown of her own health and/or mind. But instead she says she took on creating a "night school" for autistic kids in the community. As another reviewer has said, the fact that her son navigated them through downtown Chicago because he had memorized an atlas of the United States when he was not yet four, but he still wasn't talking--it's not ringing true. I feel a fair amount of license has been taken with this story to make it sound perfect and impressive--and we're never allowed to forget just how brilliant and superior her son is to all those "typical" kids out there. Not only that, she keeps finding ways to throw in how brilliant her family of origin was, with her wealthy inventor grandfather and artistically precocious sister. There is a performance orientation here that I've spent many years trying to break free from, and I am recoiling at the pride and perfectionism I'm picking up from this book. I can't read any more of this.
Here's the thing.
June 12, 2013
Verified Purchase
Format: Hardcover
SNIPPED
There's a lot of problems with the time line in addressing the actual amount of time he "had autism". It sounds like maybe a year total, at most. Her son was diagnosed (informally by the birth to three system) at age two some time. Her turned three before the summer, started special ed preschool in september, then she took him out around age 3.5. So he went to special ed it sounds like for a few months. At 3.5 she says, or just after he stopped preschool, he was using words, not conversationally though, and one example was him directing them through a urban downtown area by looking at a map or something. So words at 3.5. At this point he also knows how to read. Then- before he is four, she tells him about a mars special at an observatory, he "nags and pesters her" until the day comes (which requires language and interaction), then by the time they get to the observatory, again, before he is four, because they mention he is three, he is having lengthy conversation about mass and mars and planets and rotation with the lecturer in complete sentences.
I don't really have a problem with his development, because its interesting and part of his story. I don't love though that she seems to take credit for his recovery and play up her "muchness" paradigm which seemed to have him virtually not autistic in just a few months. I buy that this happened, but I think it probably would have happened with or without her in his case, and I don't love that there is so much hype about her sacrifices and awesome parenting. I practice muchness with my autistic son all the time...and I think it is good for everyone, but I don't think you can attribute a turnaround of that magnitude within 1-5 months as being solely based on play therapy. I don't love the school system either, and may not send my son, but to be fair, he only went for a few months and that results in a lot of special ed bashing in their publicity and in the book. I agree that special ed sucks in this country. But...just saying
Too- and I know people are going to freak out. It doesn't seem to me like this kid was ever really accurately diagnosed with severe autism. I don't think the book makes the claim that he had severe autism...maybe it does, but I know I heard them claim that in an interview about the book. My son had autism, now PDD NOS and talks and interacts less than this kid seemed to at the same age. It sounds to me like this kid had a speech/developmental delay and some autistic (eccentric?) features.
Then this kid- who has all these talents is doing all these interviews all the time, and it just comes across more as a ploy for book sales than....you know...passion for science all the time always.
Its an interesting story. I dunno. I just felt bull s-worded a little after reading it.
Self serving book -can I get my money back??
May 15, 2015
Format: Paperback
This seems to be a very self serving book. Kristine never leaves a chance to brag about her self & some about her child. Her kid was way too high functioning, if at all autistic. I hardly think it was any of her doing that helped the child. I didn't get any inspiration or ideas from this book to help my brilliant yet autistic child. Her situation was totally different from what a general family with an autistic child faces. Sorry, I hate to bash this book up.
Two Stars
January 28, 2016
Format: Paperback
Sorry but I just dont believe her, not everything of course but most of it is bulls***!
Story not beleivable
August 22, 2013
Format: Kindle Edition
I started reading the book because I am in a book club. I applaud this mother's love and dedication for her child, but I found the details not very believable. I do not believe the public school Special Education teacher told her to give up on teaching her son his alphabet. She may have encouraged the mother to put the flash cards aside for awhile so other areas of need could bb addressed. She was well within her rights to pull her child out of school to home school. but the Special Educator could have also effectively taught her son. I am glad her son has excelled in Education and hope he continues to thrive. but I felt like the story focused too much on the mother. I became very disinterested in the book after the 2nd chapter and I dread going to my book club to discuss this novel.
https://www.amazon.com/Spark-Mother..._reviews&filterByStar=three_star&pageNumber=1