In one of the first posts on the Facebook page, the family stated that they were told, at the hospital that Evanna might have suffered from an autoimmune disease. I actually think that's very much possible.
My understanding is that whatever Evanna had and that affected her kidnyes was chronic, meaning it was going on for a very long time.
The thing with kidney-related problems is that, generally, you can detect something is wrong with basic lab tests.
I have a really hard time believing Evanna, being a child, never complained about any symptoms way before the weeks and months before her death.
It is possible that it was the first time she showed severe ankle swelling, but it's very likely that she had been suffering with her legs, ankles and even feet swelling for a long time and nobody noticed or if the adults noticed, they didn't pay much attention to it. She might have complained of shortness of breath in the past, maybe she complained about being tired a lot.
I can totally see parents dismissing those symptoms, and I can totally believe that her symptoms probably went away and came back many times.
With kidney issues, it's also pretty usual to complain about lower back pain. And she probably had recurring UTI's.
Her end-stage renal disease could've been caused by several diseases/conditions, one of them being Lupus, for example.
It's one thing for a child to have a chronic disease, or an autoimmune disease and the parents not ever noticing anything wrong with the child until the child's condition gets severe and life threatening. That happens a lot with these types of conditions.
It's a whole different thing to see your child suffering and spend hours, days, weeks thinking if you're going to seek medical help or not. A 12-year-old child with a distended abdomen, severe ankle swelling and possibly many more symptoms can't just be ignored like that. It's not a weird rash that you try to wait for a few days to see if it goes away. That child was clearly dying and everyone just stood there.
I can't believe Evanna was going to the bathroom by herself, walking around, eating candy, etc. That poor child was most likely barely hanging on for dear life. She should've been in a hospital, and I don't think she would've been saved because her condition was clearly way too severe for anything to be done at that point.
What could've been done was taking Evanna to an hospital, she would've been provided some quality of life, she would've died in peace. This child DID NOT have to suffer. She didn't deserve that, she was just a little girl that couldn't do anything to get help, her parents had the responsibility to get her help and they didn't.
And yes, if Evanna went to the doctor for regular check-ups, her condition would most likely have been diagnosed and threated. She didn't have to die, and she certainly didn't have to die like this.
