Want to mention that we still need to watch this Kimberly to see if a DNA sample comes available. I posted about her in post 1600
TX - Kimberly Abigail Orellana, 12, Falfurrias, 9 Aug 2012
My daughter & 2yr old grandson have it. With my daughter, she was always clumsy growing up. She would trip going up or down stairs. It wasn't until puberty that her body started attacking itself. We had no clue what was going on. She always had strep/ tonsil issues (me too); she was diagnosed with mono spring 2008 (age 15), from there had a bad year with tonsil, also fell going down steps. She didn't recover after having tonsils removed, she got very sick, lost 80lbs. We were going to Children's Hosp Philly (age 16) when my hub was DX with cancer. Thankfully my daughters health was stable for a little bit; then headaches started age 17. Her spine started giving her issues at this point, she had bad spasms that took forever to get under control. Finally found a chiro who said her ribs were popping out of place. At one point I was helping a girl with her 3yr old daughter having CM brain surgery when I went to FB groups with her, started reading, here was my daughters mystery illness. It has taken 3 years to get her diagnosed. Doctors are clueless.
There are a few decent CM doctors in Texas but it's very possible she was not diagnosed or was not having symptoms.
I know this is late and OT but chiary (sp) malformation? did smurfette have this? my half sister's daughter has and she is on her third surgery to repair it it keeps leaking so the closure wont heal.
I had always thought paired w the bad teeth and possibly not being reported missing ever, that smurfette had gorwn up uncared for and possibly malnourished. probably repeating what many have said upthread
View attachment 99913I still am looking at Jazmiry Hernandez missing Dec 2011, 13 years old, 62 inches, 110 lbs. Nothing available for rule out. Anyone willing to contact Winston-Salem PD?
https://www.findthemissing.org/en/cases/18734/0/
Please tell your 1/2 sister to look for CM FB groups, there is one called Beyond the measurement, they can give her reputable surgeons because not all are qualified to do surgery and can actually make a person worst to were they will have a "bobble head" which can be fatal from it being unstable.
My 23 year old daughter and 3 year old grandson have it, have not had surgery. I haven't had a c-spine MRI yet to see if I have it too, it's possible your 1/2 sister has it but isn't showing symptoms.
thanks for the info.
she herself is a trauma RN but I know that she might not be an expert in the field of CM. her daughter is 20 years old. she has been operated on at Sharp in San Diego,CA, do you know if that one is reputable?
View attachment 103074
It's October, another year has past. Found one girl in Mexico that matches our dear Smurfette, but just a tad to old.
It's October, another year has past. Found one girl in Mexico that matches our dear Smurfette, but just a tad to old.
That looks like a great match. Good work.Thank you for your comments! I'll go ahead and submit her...