Hi Amraann,
ITA, not the same situation - though my niece was born at 24 weeks, not 26. As I have said before, very few things are black and white, lots of shades of grey, and that applies here as well I think. Personally I think I would chose to adopt or get myself a kitten before putting myself through it.
The main point of my story however, and I don't think I made it clear, is that you can't predict a person's quality of life based on a diagnosis at birth, disability or not. There are just so many other factors that have an impact, including family resources (both external and internal), how the parents have been socialized in terms of their exposure to disability, innate nature of the child, external support, etc. etc. But Amraan, I have read many of your posts and you are obviously a very together mom (mine was not) so I'm sure you are aware of this.
I know lots of people who would be considered "severely disabled" who have very good quality lives and contribute to society in many ways. On the other hand, how many screwed up people are there in the world that were born perfectly "normal" and have a terrible quality of life? (or turn out to be rapists, murderers etc. - we sure read enough about them here!)
I guess the other thing I wanted to say is that I perhaps painted too rosy a picture. It hasn't always been an easy road. My parents had little in the way of resources or support and my mother was young and very ill prepared to cope with me. Thankfully my dad was an allstar and made up for it. But its the bumps that make life an interesting ride and I would never say I was sorry I was born!
Also, doctors wield an incredible amount of power and carry much of the responsibility in cases of multiple births resulting from IVF, IMO - not to mention pharmaceutical companies and related vested interests in the "birth industry". I don't know enough about the in and outs of IVF to say anymore about it but I think the issues are very complex.
Regarding the autism thread, I'd love to join you over there at some point when I get some more time. You have no idea how much I wanted to jump in on the Travolta thread! I was practically vibrating reading some of those posts but I wanted to think it through some more, and then the action died down so I figured I missed the boat - but I see it keeps coming back to life. I've just been wrapped up in trying to get my final essays done before I head home to Canada next week. And I should not be spending so much time on WS, its so addicting! I'm going to do some traveling first with my hubby who arrives here tomorrow - whoohoo! I haven't seen him since April. Once I'm home I'll still have my dissertation to deal with so it will be a busy summer before I return to work in September. After tomorrow I won't be able to visit WS very much for a while but I will try to pop in a few times.
Oh man, this turned into another novel - sorry for the O/T parts. Now I really have to get back to this essay on Disability Culture.
Cheers, Utopia (heehee, I've turned into a real Brit the last 10 months)
Utopia your story is lovely.
I would say there is a difference between your story and that of your neice born at 26 weeks and the case of parents planning this. 26 weeks is a far cry from 22.
These 22 week gestation babies have a 10% chance of even surviving according to an article on AOL that I read this morning.