Family battling Children’s Hospital to bring teen home for Christmas #2

[CHICANA]

multiple doctors at multiple facilities over a period of years suspected or accused the pelletier's of medical abuse.

taking your child to another facility can in fact be denying them medical care. if we were dealing with different illnesses here the conversation would not even be taking place.

regarding how much evidence the state had to provide - when did you see the entirety of the evidence? please post a link.

I dint get that. How is taking someone to a different medical facility that provides medical care be denying medical care ? As far as evidence ? What other allegations besides medical neglect were brought against the parents ?
What doctors reported before ? Where are their statements? Can you please provide a link to the interviews with the parents who claimed the Pelletiers were harassing them or is this just hearsay ?

 

[Linda7NJ]

As was common in mitochondrial disease cases, Justina was taking a long list of pills, prescribed by various specialists, including Tegretol for neurological problems, Metoprolol for a rapid heart rate, and Midodrine for boosting blood pressure. In addition, she was taking a vitamin cocktail prescribed by Korson to help with her weakness and fatigue.

http://www.bostonglobe.com/metro/2013/12/15/justina/vnwzbbNdiodSD7WDTh6xZI/story.html


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[CHICANA]

I've been a journalist for many years and can honestly say that most of the reporting, except for the Globe, was terrible. The blogs were the worst.

Using loaded, emotional words such as "kidnapped" and "seized" without attribution to the parents and rebuttal by the hospital or DCF in a news story is wrong and unethical. Repeating such "facts" put out by the family as the ER doctor was nothing more than an intern when in truth he had been a full-fledged doctor for 11 or more years is very wrong and unprofessional.

Too many reporters took the Pelletiers at their word and did not attempt to check the truthfulness of their ranting. Then other papers and blogs picked up those early unchecked statements and re-reported them as fact.

That is lousy journalism. IMO.

Here's some REAL documentation of what went down at BCH, from the Globe:

http://www.bostonglobe.com/lifestyl...ssachusetts/puyPhesGkKE6rGLid2VM2L/story.html


",,,,,,,The judge’s four-page decision, which was provided to the Globe, was remarkable for its detail and forcefulness. Johnston faulted Connecticut’s child protection agency for its failure to get involved in a case involving a child from its state, and faulted Pelletier’s parents for their verbally abusive manner and haphazard decision-making that he says has sabotaged plans to move their daughter closer to home.


Johnston wrote that the parents called Boston Children’s Hospital personnel Nazis “and claimed the hospital was punishing and killing Justina. Efforts by hospital clinicians to work with the parents were futile and never went anywhere.”

More recently, he wrote, “there has not been any progress by the parents. Rather, the parents . . . continue to engage in very concerning conduct that does not give this court any confidence they will comply with conditions of custody.” He noted that because of allegations that Justina’s father, Lou Pelletier, threatened a state social worker assigned to the case, the worker had to be reassigned.

Why wasn't he arrested for making threats against the social worker and why did he give justina back ? Did this info come out in a hearing or is it just what he got from the social worker's reports ? Why in the world would the state recommend she go home if lou is so dangerous ? Imo the judge is simply trying to cover his a!#

 

[Karmady]

I dint get that. How is taking someone to a different medical facility that provides medical care be denying medical care ? As far as evidence ? What other allegations besides medical neglect were brought against the parents ?
What doctors reported before ? Where are their statements? Can you please provide a link to the interviews with the parents who claimed the Pelletiers were harassing them or is this just hearsay ?

medical abusers "doctor shop." Similar to drug seekers. If you can't get what you want at one facility, go to another. If one facility offers treatment and you don't like that particular treatment -- off to the next facility. So the child potentially is denied appropriate medical care in favor of the potential for the desired treatment elsewhere. Make sense? It's so obvious to me I'm having a hard time articulating it.

 

[Linda7NJ]

Why wasn't he arrested for making threats against the social worker and why did he give justina back ? Did this info come out in a hearing or is it just what he got from the social worker's reports ? Why in the world would the state recommend she go home if lou is so dangerous ? Imo the judge is simply trying to cover his a!#

Justina was an expensive political hot potato. She's Connecticut's problem now. IMO

Justina is in far better shape now than when she was taken to BCH. They've done all they could do for her.
Her best interests are a balancing act at this point.

All IMO



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[CathyinTexas]

I don't think the reporting is incompetent.
While the state can't release information, the parents have the right to ALL the info in their case file. I'm sure the reporters have seen the documentation regarding the removal of Justina and I'd be willing to bet it matches the Pelletier's account.

Nancy Grace said they showed them medical documentation and according to her they were telling the truth and she blasted DCF. So other news sources saw the same and will see more as the Pelleitiers get them unless the Pelletiers lawyers counsel them to wait for trial.

 

[jaunty-girl]

Nancy Grace said they showed them medical documentation and according to her they were telling the truth and she blasted DCF. So other news sources saw the same and will see more as the Pelleitiers get them unless the Pelletiers lawyers counsel them to wait for trial.

Media sometimes (often) gets facts wrong. That is the case here.

Here we go with the Pelletiers contradicting themselves again. I thought they were going around saying they didn't know anything because they were being kept in the dark about Justina's treatment. If they had medical records, then they were not being kept in the dark.

 

[CathyinTexas]

She wasn't abused, the state sure didn't have to provide much evidence, I mean the parents were going to take her to another hospital, they weren't denying her medical care. Who made these allegations against the parents. I missed the interviews with the parents that were harassed by the Pelletier's, can you please provide a link ?

Yes, there were some parents who complained. I suppose they didn't know the details in Justina's case. That still doesn't make what the hospital did legal. It will all come out eventually and I believe the Pelletiers will be exonerated.

 

[CathyinTexas]

That wasn't in response to your post

From what I have heard throughout this ordeal is that Justina did not receive physical therapy. She was harassed to just do it. Get up and walk. It sounds more like bullying and mocking to me. That is not surprising because their position is that it was faked or all in her head. I am sure they emotionally and psychologically abused her, there is no doubt in my mind. But because she came from a very stable and strong family unit, and received and has continued to receive much love and support from her family, she has withstood it.

 

[CathyinTexas]

multiple doctors at multiple facilities over a period of years suspected or accused the pelletier's of medical abuse.

taking your child to another facility can in fact be denying them medical care. if we were dealing with different illnesses here the conversation would not even be taking place.

regarding how much evidence the state had to provide - when did you see the entirety of the evidence? please post a link.

What I don't trust is the reporting that they were accused of abuse by multiple doctors or facilities. If so, she would have been removed many years ago, given all the medical care she received. Doctors are becoming more like little gods in their own estimation, and don't want to be disputed, imo.

 

[CathyinTexas]

medical abusers "doctor shop." Similar to drug seekers. If you can't get what you want at one facility, go to another. If one facility offers treatment and you don't like that particular treatment -- off to the next facility. So the child potentially is denied appropriate medical care in favor of the potential for the desired treatment elsewhere. Make sense? It's so obvious to me I'm having a hard time articulating it.

Also, if your child is very sick and deteriorating before your eyes and a doctor can't find the reason or treat her effectively, the proper action would be to continue to seek a doctor who could help the child. That is what they did, and what many other families of children with mito and lyme and other rare conditions have to do. More and more metabolic and deteriorating conditions are manifesting in children and adults and the medical field seems to be at a loss to treat them effectively. There were many women who had "female" problems that were told it was all in their head or received no effective treatment for years until better diagnostic tools were available.

 

[liljim]

i agree, doctors are becoming more like little gods... that is why i choose not to take my child to doctor's anymore, i trust in my own good judgement.

reporters, judges, police, state agencies, doctors, psychiatrists, priests - none of these can be trusted because i can show you examples of times when people in these professions have been corrupt.

so if my child is ever kidnapped by her school and locked up in a hospital where they tell me she has cancer, it should be my absolute right to bring her home and seek as many opinions as i want, and if i choose so it should be my right to discount any doctor's (damn little gods) opinions and not provide her any treatment.

considering the level of conspiracy that massachusettes (and i consider the entire state complicit in this) has engaged in to deny this girl and her family of their freedom (even the right to see the sunlight!!) surely they could have faked or planted the stories of other reports of abuse/neglect, i have not personally seen any proof of it so i choose not to believe it happened. you expect me to trust the media?!

a doctor just hours out of medical school got his feelings hurt and decided to play god and punish this girl by using her a guinea pig for secret research. it is appalling.

all just my opinion, based on what i decide words mean to me.

 

[Morag]

i agree, doctors are becoming more like little gods... that is why i choose not to take my child to doctor's anymore, i trust in my own good judgement.

reporters, judges, police, state agencies, doctors, psychiatrists, priests - none of these can be trusted because i can show you examples of times when people in these professions have been corrupt.

so if my child is ever kidnapped by her school and locked up in a hospital where they tell me she has cancer, it should be my absolute right to bring her home and seek as many opinions as i want, and if i choose so it should be my right to discount any doctor's (damn little gods) opinions and not provide her any treatment.

considering the level of conspiracy that massachusettes (and i consider the entire state complicit in this) has engaged in to deny this girl and her family of their freedom (even the right to see the sunlight!!) surely they could have faked or planted the stories of other reports of abuse/neglect, i have not personally seen any proof of it so i choose not to believe it happened. you expect me to trust the media?!

a doctor just hours out of medical school got his feelings hurt and decided to play god and punish this girl by using her a guinea pig for secret research. it is appalling.

all just my opinion, based on what i decide words mean to me.

And certainly since these hospitals, doctors and judges have been so viciously incompetent and evil, we can assume that every doc, judge, and hospital in the country- nay, the world- are equally awful, and if we or our kids are sick, we had best stay home and take our chances with dying rather than being tortured by the medical professionals. Is that what you mean? Unless, of course, Lou Pelletier can refer us to people and institutions that he can personally guarantee are perfect, saintly, fair and non-corrupt.
That's what your words mean to me, amirite??

 

[annahanna]

From what I have heard throughout this ordeal is that Justina did not receive physical therapy. She was harassed to just do it. Get up and walk. It sounds more like bullying and mocking to me. That is not surprising because their position is that it was faked or all in her head. I am sure they emotionally and psychologically abused her, there is no doubt in my mind. But because she came from a very stable and strong family unit, and received and has continued to receive much love and support from her family, she has withstood it.

Justina most certainly received PT during her time in the custody of MA DCF. The order returning custody to her parents, mentioned her progress in physical therapy. http://www.bostonglobe.com/metro/20...her-parents/c6ETPN6UaIDLiPNHwJOZUM/story.html. The note that her parents "smuggled" out that was reportedly written by Justina mentions (complains about) PT/OT. http://failuretolisten.files.wordpress.com/2014/04/justinaletter1.jpg?w=1160. In addition, Boston Children's Hospital has a reputation of emphasizing the extensive use of PT/OT in both physical rehabilitation and chronic pain management. (I can't provide a specific link for that. It is just a known reputation within the parents of children w/chronic disease community. You could look up the BCH Mayo Family Foundation Pediatric Pain Rehabilitation Program. I suspect that this very elite program is what the docs at BCH had in mind for Justina initially but her parents put the kabash on that quickly. That is really too bad. I know kids who had their lives turned around by the PPRC. In My Opinion of course.)

 

[annahanna]

http://failuretolisten.files.wordpress.com/2014/04/justinaletter1.jpg?w=1160

This is a copy of the note that was reportedly "smuggled" out by Justina's parents when she was in DCF custody in MA. It is very difficult to read as it is full of misspellings, grammatical errors, and very poor handwriting. The site this was posted on made an attempt to decipher it. Some of the translation I agree with. Some I don't. However, what can be deciphered from the note appears to be the complaints of a very immature child who does not like the rigors of Physical Therapy and Occupational Therapy. It is quite obvious from this note that Justina was given PT and OT and it is apparent to me (IMO) that she deliberately did not participate. "I didn't walk or stand." True, rehabilitative PT and OT are difficult, painful experiences. They are not the "soaking in the swimming pool" and "sleeping late" experiences that Justina is looking of forward to.

Translation from "the note":
*"When I got on harness thing they try moved my legs. I didn't walk or stand."
*"They are ----" (---- illegible - leang? - any guesses?)
*"What happened the other nite --- did you see me? (---- illegible - maybe hurt or how - any guesses?)
"OT laugh at me when I am falling."
*"And a lot more...."
*"When am I ------ on news?" (----- illegible - any guesses?)
*"I am speaking up like "I can't do it."They say YES and then I say "it torture - STOP" and they say nothing and they --- pushing me and goes on and on!" (---- illegible - any guesses?)
*"They yell at me."
*"Please don't let me go anywhere else,"
*"They don't care that I'm sick, they treat me the same way. It's ----- everything!" (---- illegible lrirn - learn? - any guesses?)
*"They do not let me sleep very much."
"Hurry"
*Carolyn/Kristin and more OT and Dominic they hurt me all the time push me all the time and more."

 

[Linda7NJ]

Apparently the family is planning a huge coming home bash...they're inviting everyone ...I mean everyone, perfect strangers, via the Facebook page.






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[CHICANA]

http://failuretolisten.files.wordpress.com/2014/04/justinaletter1.jpg?w=1160

This is a copy of the note that was reportedly "smuggled" out by Justina's parents when she was in DCF custody in MA. It is very difficult to read as it is full of misspellings, grammatical errors, and very poor handwriting. The site this was posted on made an attempt to decipher it. Some of the translation I agree with. Some I don't. However, what can be deciphered from the note appears to be the complaints of a very immature child who does not like the rigors of Physical Therapy and Occupational Therapy. It is quite obvious from this note that Justina was given PT and OT and it is apparent to me (IMO) that she deliberately did not participate. "I didn't walk or stand." True, rehabilitative PT and OT are difficult, painful experiences. They are not the "soaking in the swimming pool" and "sleeping late" experiences that Justina is looking of forward to.

Translation from "the note":
*"When I got on harness thing they try moved my legs. I didn't walk or stand."
*"They are ----" (---- illegible - leang? - any guesses?)
*"What happened the other nite --- did you see me? (---- illegible - maybe hurt or how - any guesses?)
"OT laugh at me when I am falling."
*"And a lot more...."
*"When am I ------ on news?" (----- illegible - any guesses?)
*"I am speaking up like "I can't do it."They say YES and then I say "it torture - STOP" and they say nothing and they --- pushing me and goes on and on!" (---- illegible - any guesses?)
*"They yell at me."
*"Please don't let me go anywhere else,"
*"They don't care that I'm sick, they treat me the same way. It's ----- everything!" (---- illegible lrirn - learn? - any guesses?)
*"They do not let me sleep very much."
"Hurry"
*Carolyn/Kristin and more OT and Dominic they hurt me all the time push me all the time and more."

What if she really was physically/medically unable to do what they were trying to force get to do ? IMO that would be child abuse.

 

[CHICANA]

Justina most certainly received PT during her time in the custody of MA DCF. The order returning custody to her parents, mentioned her progress in physical therapy. http://www.bostonglobe.com/metro/20...her-parents/c6ETPN6UaIDLiPNHwJOZUM/story.html. The note that her parents "smuggled" out that was reportedly written by Justina mentions (complains about) PT/OT. http://failuretolisten.files.wordpress.com/2014/04/justinaletter1.jpg?w=1160. In addition, Boston Children's Hospital has a reputation of emphasizing the extensive use of PT/OT in both physical rehabilitation and chronic pain management. (I can't provide a specific link for that. It is just a known reputation within the parents of children w/chronic disease community. You could look up the BCH Mayo Family Foundation Pediatric Pain Rehabilitation Program. I suspect that this very elite program is what the docs at BCH had in mind for Justina initially but her parents put the kabash on that quickly. That is really too bad. I know kids who had their lives turned around by the PPRC. In My Opinion of course.)

Get parents didn't have custody, how could they have put the kabash in anything ?

 

[jaunty-girl]

What if she really was physically/medically unable to do what they were trying to force get to do ? IMO that would be child abuse.

And what if they didn't? Physical therapy is hard, it's painful and exhausting. They were trying to get her to regain use of her legs, that I can assure you wouldn't be comfy and cozy. Lou has said that his daughter has the mentality of a young child, a good number young children would say that painful therapy was torture. I know when I had to have PT for my torn ACL I thought it was torture.

 

[Donjeta]

*"When I got on harness thing they try moved my legs. I didn't walk or stand."

Few people are physically/medically unable to practice walking in a harness while the physiotherapist moves their legs