Family battling Children’s Hospital to bring teen home for Christmas #2

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  • #901
Clearly you have some very strong opinions about this. That said, a surgeon that is going to cut you open, does indeed need some medical history, to do his job properly. Not to mention that if he doesn't ask and something happens to you, he opens himself up to being accused of being negligent.

You do know, that even if he doesn't have a file on you, if he is at the same hospital as your gastroenterologist, he can look at the file that they have on you, right? I mean they have access because if he's going to be cutting you open, it benefits you to have him informed.

This is all much like a pharmacist knowing ALL the drugs you're taking, it's not because he's nosy.

bbm, absolutely not, different hospitals. The gastro dr has his own office, and he plays opera while it's being done, I choose to not be put under completely so I can go eat after. Oh and I use my mother's (deceased) discount cards to grocery shop. So they can track her buying habits.
 
  • #902
bbm

http://www.bloomberg.com/news/2014-...e-donuts-to-cigarette-charges-for-health.html



While all information would be bound by doctor-patient confidentiality, he said he’s aware some people may be uncomfortable with data going to doctors and hospitals. For these people, the system is considering an opt-out mechanism that will keep their data private, Dulin said.


This is a great argument against private, for-profit health care systems.


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  • #903
Like I said the dr that performed my appendectomy does not need to know anything else about my medical history, nothing... it's not his business. It's like telling the transmission guy about my air conditioner problems. jmo I have a primary care dr and I have a gastroenterologist, the dr the did emergency surgery I will never see again, he does not need a file on me.


Actually he does need to know your medical history. Especially for surgery.


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  • #904
Actually he does need to know your medical history. Especially for surgery.


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If that were true then all unconscious people that arrive at the hospital emergency rooms would not be allowed to have surgery.
 
  • #905
  • #906
Dr. Simona Bujoreanu, a psychologist.





http://www.brazelton-institute.com/bujorbio.html







Dr. Jurriaan Peters



http://www.childrenshospital.org/doctors/jurriaan-peters



She went in for Flu symptoms right. I wouldn't want either one of these two to look my child when they are there with flu symptoms. jmo


I don't know on what planet flu symptoms consist of neurological issues such as slurring and speaking gibberish, not being able to walk, eat or swallow.

We don't even know if she HAD the flu.


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  • #907
I don't know on what planet flu symptoms consist of neurological issues such as slurring and speaking gibberish, not being able to walk, eat or swallow.

We don't even know if she HAD the flu.


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An earlier post, I believe from annahanna (I am working and do not have time to search this one out) quoted medical records from Justina's admission that do not mention "flu" at all. IMO, her parents were tossing that word around as shorthand for "she's sick and we don't know what it is." There does not seem to be any record of her having classic influenza symptoms at all.

When the parents chose to bring Justina thru a snowstorm on a weekend night to BCH without first checking to see if Dr. Flores was working or even on call, they were, IMO, in effect saying we agree to have our child examined and treated by whichever emergency room doctors are on duty. If what they wanted was to see Dr. Flores (who had moved to BCH from Tufts), they needed to make an appointment with him. If they could not wait for that, they could have had Justina re-admitted to CT Children's Hospital, an excellent facility affiliated with Hartford Hospital.

It's been reported in the MSM many times that they took her to BCH to see Dr. Flores "on the suggestion" of Dr. Korson at Tufts, but I do not recall any reporting that says he told them to do it on an emergency basis during a snowstorm in stead of making a regular appointment. IMO, another bad choice by the family that led to outcomes they did not like.
 
  • #908
An earlier post, I believe from annahanna (I am working and do not have time to search this one out) quoted medical records from Justina's admission that do not mention "flu" at all. IMO, her parents were tossing that word around as shorthand for "she's sick and we don't know what it is." There does not seem to be any record of her having classic influenza symptoms at all.

When the parents chose to bring Justina thru a snowstorm on a weekend night to BCH without first checking to see if Dr. Flores was working or even on call, they were, IMO, in effect saying we agree to have our child examined and treated by whichever emergency room doctors are on duty. If what they wanted was to see Dr. Flores (who had moved to BCH from Tufts), they needed to make an appointment with him. If they could not wait for that, they could have had Justina re-admitted to CT Children's Hospital, an excellent facility affiliated with Hartford Hospital.

It's been reported in the MSM many times that they took her to BCH to see Dr. Flores "on the suggestion" of Dr. Korson at Tufts, but I do not recall any reporting that says he told them to do it on an emergency basis during a snowstorm in stead of making a regular appointment. IMO, another bad choice by the family that led to outcomes they did not like.

Here are the notes:

Patient Name: Justina Pelletier
Originated by: Stephanie Newton MS on 2/10/13
Authenticated by: Gerard Berry MD on 2/13/13
Print Date/Time: 4/25/2013

"HISTORY OF PRESENT ILLNESS: Justina has a longstanding history of possible mitochondrial disease with abdominal pain, poor motility, headaches and fatigue. These concerns started becoming much more severe in October 2012 when she began having what is described as odd movements of her right leg which caused her foot to pronate. She was seen by an orthopedic doctor, Dr. Webster at Tufts who prescribed a brace for the leg. Over time Justina's abnormal movements began to affect the left leg and now the rest of the body is affected. Her mother reports that over the past week she has had increased weakness which cause (sic) her to not be able to walk. She is having significant leg pain. Her headaches are becoming worse with light and sound. She also has intermittent slurred speech and altered mental status. Her mother reports that over the last 6-8 weeks her slurred speech and 'gibberish language' has been getting worse. Justina was admitted to Connecticut Children's Hospital on Monday February 04 due to worsening neurological problems as noted above. Her mother reports that it was difficult to complete this admission as Justina was not felt to have a known identifiable diagnosis. Her mother chose to bring her home from the hospital on February 8 hoping that she would do better. After discharge she was still not doing well, complained of feeling weird was not eating and had abnormalities on swallowing. Her other physicians were consulted and it was recommended that she be admitted here at Boston Chidlren's Hospital. She has been here since February 10."

https://www.facebook.com/BeauBermanFOXCT/posts/536571959772161
 
  • #909
It is my personal opinion, and has been for some time, that Justina is not the least bit interested in becoming an ice skater and especially not a competitive ice skater. Hence, if she has balance issues, or can't walk, or has a gimpy leg, it is unlikely that she would be a candidate for ice skating, much less competitive ice skating.

If she is to follow a family tradition, I think she is much more inclined to want to work with the dogs in some way. Maybe as show dogs, maybe as service dogs. Or, maybe to work with other animals in some way. She is not happy on the ice, in my opinion.
 
  • #910
It is my personal opinion, and has been for some time, that Justina is not the least bit interested in becoming an ice skater and especially not a competitive ice skater. Hence, if she has balance issues, or can't walk, or has a gimpy leg, it is unlikely that she would be a candidate for ice skating, much less competitive ice skating.



If she is to follow a family tradition, I think she is much more inclined to want to work with the dogs in some way. Maybe as show dogs, maybe as service dogs. Or, maybe to work with other animals in some way. She is not happy on the ice, in my opinion.


I totally agree.
I've never known anyone that enjoyed doing something that they would/could never excel in...especially if they were capable of doing something they enjoy and could actually excel at.

IMO


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  • #911
I totally agree.
I've never known anyone that enjoyed doing something that they would/could never excel in...especially if they were capable of doing something they enjoy and could actually excel at.

IMO


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I agree, and your post brings up something that I do not think has ever been pursued in this thread OR in the MSM reporting.

Although there seems to be some confusion about the timing of the skating show and her admission to CT Children's Hospital (which precipitated the midnight ride to BCH), I wonder if the practice and stress of performing in the ice skating (show? competition? Which was it?) was what caused her to have the leg problems? Maybe it was too much for a sick kid to take part in.

I believe her mother and sister both taught ice skating, and no doubt she wanted to be part of that. But maybe it was a bad idea health-wise. I also have never seen anything reported locally about this skating event, so I do not think it is a major competition.

Does anyone here know anything more about the nature of the event and/or its effect on Justina?
 
  • #912
  • #913
According to Lou, directly from his lips as he related to Glen Beck in his first video interview, Part Two at 3:20 - Justina was in 3 different ice skating shows. Lou's mother in law was visiting on January 23, 2013. (I believe it was her birthday.) Justina skated for her grandmother on that day. Then, she got the flu.

That's what Lou had to say.

Now we know that on Monday February 4, Justina was admitted to Connecticut Children's Hospital on Monday February 04 due to a worsening neurological problem. Her mother brought her home from the hospital on February 8, and on February 10, in the middle of the night, in a huge blizzard, in an ambulance accompanied by her mother, she was driven to the emergency room at Boston Children's Hospital arriving at 4 AM in the morning.
 
  • #914
  • #915
You mean this guy right?
http://www.linkedin.com/pub/jurriaan-peters/4/121/627

That's the one you are referring to when you say 7 months, right?

...for 7 months when Justina was admitted. Then, a year later, he was promoted to Assistant Professor at Harvard Medical School. He has about 20 years of training and experience in this field. Well qualified.

From the Boston Globe story (part 1):

Peters, who was in his late 30s and had come from the Netherlands to Boston for his residency, had completed his medical training just seven months earlier


So somewhere, somehow, someone misinformed the Globe as to Dr. Peters' qualifications. This falsehood/error has colored the public perception of this story from the beginning. I wonder if the Globe has ever printed a correction?
 
  • #916
In the 70s and 80s children were foster care with no clear path back or into an adoptive home. There were multiple reforms in the nineties including limits on how long the state could take to terminate parental rights. The states have twelve months to terminate with the possibility of one six month extension. Time had run out on this case, the state simply did not have the evidence to support termination in the trial so they dropped the case.
 
  • #917
...for 7 months when Justina was admitted. Then, a year later, he was promoted to Assistant Professor at Harvard Medical School. He has about 20 years of training and experience in this field. Well qualified.

From the Boston Globe story (part 1):

Peters, who was in his late 30s and had come from the Netherlands to Boston for his residency, had completed his medical training just seven months earlier


So somewhere, somehow, someone misinformed the Globe as to Dr. Peters' qualifications. This falsehood/error has colored the public perception of this story from the beginning. I wonder if the Globe has ever printed a correction?

Thanks for pointing this out. It is a great example of the sloppy reporting I have been going on about. Even the Globe has screwed up. And of course, this kind of erroneous detail got picked up again and again and again on other media sites. All any decent reporter needed to do was contact the hospital or even just visit various doctor-info websites to get his full medical resume. But few, if any, bothered to do that very basic, very necessary step. For shame.

Similarly, based on stories the family told, the tale of the BCH staffer who supposedly said "we don't believe in mito here" got re-reported quite a bit. But BCH has a whole mito department. Did any reporter try to get the name of this doctor so that he/she could be asked if that really was said? Or to find out if such a doctor actually existed? Nah, too much trouble, and IMO it would have spoiled the "poor poor Pelletiers" narrative that was being spun. Also for shame.
 
  • #918
You are so sadly right about the incompetent reporting of this story. Far too many papers/TV stations just echoed one another's stories without ever trying to get objective confirmation of the wild and conflicting accusations the Pelletiers have made and still are making. Not journalism's finest hour.

The Boston Globe did an outstanding job in investigating Boston Children's Hospital and the Justina Pelletier case. Simply outstanding!

Loved this last week from The Boston Globe:

...But other observers say the stunning pace of change suggests political and legal factors were in play.

“There was such a turnaround of opinion in such a short span of time,” said a longtime child protection specialist who has followed the case closely.


http://www.bostonglobe.com/metro/20...a-pelletier/AIEm0BmUXsDWT4PJADBcLI/story.html

And from The Boston Globe's recent Editorial Page...

Certainly Not A Blog, but yes an opinion/point of view piece by an editor/s, publisher...of The Boston Globe:

Pelletier family is reunited, and DCF must take stock

...And state policy must also reflect the limitations of the medical profession: As the disagreement between Tufts and Children’s showed, even well-trained, well-intentioned doctors can reach different conclusions in an especially tough case. Even after an independent review by the state, total certainty may not be possible for every child. When it’s impossible to say who is right, the state shouldn’t necessarily assume it’s the parents who are wrong.

http://www.bostonglobe.com/opinion/...-take-stock/hLAI0dt0yeDCn7zqB1Q88K/story.html

BBM^^ Thank you, The Boston Globe!
 
  • #919
Pretty impressive medical resume, IMO.
From the way the family and their supporters have described this guy, you'd think he was nothing more than a candy striper.

I live in a major metropolitan city. Familiar with Boston Children's, as well as Connecticut's top hospitals and more.

Several friends' husbands MD's from Harvard...So what? Dime a dozen in major metro areas and top hospitals.

He's affiliated with Harvard & at Boston Children's Hospital...and he erred.

They're not all gods bc they're employed by Boston Children's Hospital or affiliated with Harvard.

MOO

(epiphany: an ah-ha moment; atheist here)
 
  • #920
i thought the globe reporting was adequate and on par with most other reporting you see today.

i did not find it exceptional or outstanding and there were many inaccuracies they repeated which it seemed like they could have easily discounted before they made it into print.
 
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