Right I have restarted the video, and have got 30 minutes in.
Here is a simplified transcript.
Q about Noras condition
A 2 hemisphere of brain fuse together or brain is smaller. Nora can’t breathe well her nasal passages are too close together. She has only one frontal tooth, but a dental surgeon made it look like two. Her brain isn’t fused, she had a smaller brain.
Q condition at 15- physical problems
A physically well and able from a basic POV, but struggled with balance and coordination if she ran or moved quickly it was difficult with an awkward gait. She would fall or stumble in areas not flat or straight. Can’t swim easily or anything else that requires balance. Could climb a little bit at a play park, but not an adventure trail or obstacle course. Her hands, had OT at times to help. It’s like she wears rubber gloves all the time. She struggles to hold anything, move anything with force. Holds hands at funny angle sometimes. Writing couldn’t write, it was like a small child. She couldn’t write more than a sentence. Couldn’t manage zips or buttons with ease or out her hands behind her back, couldn’t twist an object with force, she couldn’t manage a phone or hold a phone close to her ear. They used video chat as hand to mouth difficult. Her core strength tired easily from just sitting. Just to stay sitting required a lot of effort. Mum took her regularly to osteopathy to help her tiredness levels. Get nervous system was dtruined from everyday activity and suffered from night time wetting. Not constant, but regular. Week before holiday she had bed wet a lot. She had mild hearing difficulty and wore a hearing aid at school. It was when busy or lots of people speaking. Not worn when she disappeared. Nora could hear parents calling in the house, mum didn’t think it was relevant.
Q she attended a specialist school, tell us about that
A attended school for moderate learning difficulties. She could express herself well at home with familiar people with basic concepts. Could not relate to anything abstract, conceptual, imaginary, she had to experience something to talk about it. Could count, but couldn’t do basic maths not even 2 +3. She learnt basic addition through rite, but didn’t understand money. She had a good memory, remembered facts well, but couldn’t explain things. Couldn’t play games over age 6, anything that required calculation were impossible. A lot of things Nora needed basic help with, 1 instruction at once. At school she could learn basic stories, studied simple sentence structure, that was the maximum. Those were her basic intellectual things, we used to explain that she had a mental age of 5 or 6. For somethings she could relate at an older age with her siblings, things she was familiar with. From a school age perspective that was her limit.
Q from a POV of independence, what was her relationship with you in that regard?
A very dependent wasn’t autonomous for most things in her life. She could get herself dressed as long as it didn’t involve difficult items of clothing eg tying something behind her back she would need help. She needed help with her hair, I brushed her hair everyday. She could have a basic shower and wash herself with soap, she couldn’t wash her hair. She could put shampoo on, but couldn’t wash it off. Daily showers required support. Brushing teeth she could manage, but not confidently. We supported with that. We always bought her shoes with Velcro because she couldn’t do laces. She could put her own shoes on, because they were adapted. Nora didn’t do anything at home without my help, if we did a family activity she would be sitting beside me or her dad, she’d often immediately be turning to me for help. She never went anywhere herself. To go to school a taxi collected her everyday, she only had to walk the length of a car, just a few paces because she couldn’t manage a more autonomous form of transport. For most daily activities Nora needed my help in some way. She could eat independently with a fork, but she couldn’t use a knife. We had to cut her food for her, I’m trying to think of other basic activities she would have needed my help for, but basically almost everything.
Stopped at 36 min in (for my dinner)