Parents Under Fire for Making Daughter Stay Child Forever

  • #61
jean, you are right,, but just to clarify-- i was kind of referring to everyone who is angry at them in general, not just on this thread.

Everyone in general doesn't read this message board. :p
 
  • #62
Any chance this child/woman would have had to become pregnant if she didn't have the surgical proceedure would have most assuredly been the result of rape. she cannot now and will never be able to consent to having sex.

rankled disability and feminist groups can rankle all they bloody well want — except they don't have a leg to stand on with this case!
 
  • #63
I wish my daughter could have a hysterectomy at some point in her life. She will not be able to consent to sex or having a baby, and if she had a baby she wouldn't be able to care for it.

I don't like "the pill" as an option either.

:(

God bless Ashley X and her family.
 
  • #64
Some cases are so obvious that - yeah, maybe a court should have checked off, but it really is obvious that this was the right decision for her.

This is what I was thinking.

That poor family :(
 
  • #65
I wish my daughter could have a hysterectomy at some point in her life. She will not be able to consent to sex or having a baby, and if she had a baby she wouldn't be able to care for it.

I don't like "the pill" as an option either.

:(

God bless Ashley X and her family.


Taximom I totally understand what your saying.
I am disgusted at these groups lashing out at these parents.
I wonder if anyone of them has a severely disabled child?
 
  • #66
Taximom I totally understand what your saying.
I am disgusted at these groups lashing out at these parents.
I wonder if anyone of them has a severely disabled child?



Me too Amra. I would have done the same thing they did.
 
  • #67
Me too Amra. I would have done the same thing they did.

I can see more than one point of view here and issues that should be discussed. But we should all start with the understanding that these parents did what they believed to be best under horrendous circumstances.
 
  • #68
I can see more than one point of view here and issues that should be discussed. But we should all start with the understanding that these parents did what they believed to be best under horrendous circumstances.

Absolutely!
 
  • #69
Amraann, if I remember correctly Richie has Autism right? Is early puberty and stunt in growth also a part of Autism? Just curious. My son Christian is also autistic but he is right on the charts as far as growth is concerned and he was even born only weighing 2 pounds and 12 1/2 inches long. He has caught up though...Is this something that comes later in autistic children as they get older or is this something else causing that to happen?


BhamMama, Richie is about the same size and height as your son.
He also is showing signs of puberty.
My husband is not very tall and neither are his relatives.
At 5'6 I am a giant of a women in my family.. Although my dad is 6'2 and my 15 YO (who Richie is built similair too) Is 5'8

So there is no way to know yet if he will gain some height.
He is about due for a Neurology appt and the run of tests so I will have a better idea of our options after that.

Taximom I know the implants can be painful for those that have never heard a sound before. Also it is considered frowned upon in the deaf community to conform to the hearing world. IMO back in the 60's when those fighting for disability rights began their fight, those in the deaf community took a different approach. I personally see nothing wrong with their approach.
 
  • #70
Update

Disabled girl's parents defend growth-stunting treatment

NEW YORK (CNN) -- It's been a year since the parents of a severely disabled child made public their decision to submit their daughter to a hysterectomy, breast surgery and drugs to keep the girl forever small. Today, the couple tell CNN, they believe they made the right decision -- one that could have a profound impact on the care of disabled children worldwide.

This is a long article, but interesting. I support the parent's decision.

http://www.cnn.com/2008/HEALTH/conditions/03/12/pillow.angel/index.html?eref=rss_topstories
 
  • #71
Update

Disabled girl's parents defend growth-stunting treatment

NEW YORK (CNN) -- It's been a year since the parents of a severely disabled child made public their decision to submit their daughter to a hysterectomy, breast surgery and drugs to keep the girl forever small. Today, the couple tell CNN, they believe they made the right decision -- one that could have a profound impact on the care of disabled children worldwide.

This is a long article, but interesting. I support the parent's decision.

http://www.cnn.com/2008/HEALTH/conditions/03/12/pillow.angel/index.html?eref=rss_topstories


me too
 
  • #72
Update

Disabled girl's parents defend growth-stunting treatment

NEW YORK (CNN) -- It's been a year since the parents of a severely disabled child made public their decision to submit their daughter to a hysterectomy, breast surgery and drugs to keep the girl forever small. Today, the couple tell CNN, they believe they made the right decision -- one that could have a profound impact on the care of disabled children worldwide.

This is a long article, but interesting. I support the parent's decision.

http://www.cnn.com/2008/HEALTH/conditions/03/12/pillow.angel/index.html?eref=rss_topstories


I too support these parents!

I do acknowledge the rights of those disabled to live a full life but in some cases that is not possible.
I think the laws have gone from one extreme to another.
It use to be.... Lock anyone with an IQ lower then 80 away and I think that is wrong.. But on the same token I do not see the need to burden parents or caretakers of severely disabled children with the extra burden of puberty when these are not people who will ever be able to Marry, have children etc.
It should also be noted that Severely Disabled Teenagers experience some severe behavior Problems.. (I don't think that applies to this little girl)
Exactly what were these parents suppose to do when this girl started her period??
Sorry to be graphic .. but think about it.
In a nut shell it would have just been more of a mess for them to clean up . ... It serves no purpose for this child to have to endure that along with cramps etc.
Why on earth would anyone advocate more pain or discomfort for this child who will never be able to emotionally deal with being full grown woman?
 
  • #73
I'm with Reb about others outside of WS that even made this an issue. They need to mind their own business, take care of their own children and be thankful this wasn't their issue to deal with.

This sort of reminds me of the huge war in the deaf community about cochlear implants. To me (not deaf) it makes perfect sense to have an implant that might help me or a loved one hear better. To someone that is in the deaf community, it is considered unethical.

It's a very interesting world, isn't it?

I agree. It's such a personal decision for a parent who loves their child and knows their child. If it means that their child could physically suffer in adolescence and adulthood or even be institutionalized, I think surgery is an option. It should be no one's business but the parents. They don't need judging, they need support and volunteers.
 
  • #74
I missed this thread the first time around as I was away from websleuths for a couple of years. There aren’t words to express how disturbing it was for me to read the reactions to this situation in this thread. I have read many opinions about what was done to Ashley in the last few years, from one extreme to the other. As I have stated before, for me there are few black and whites in this world, only shades of grey. When it comes to issues concerning disability, while I obviously have a bias, it is borne from my experience as a person born with a disability and a person who has grown up around disabled people, many who would be considered in the eyes of the non-disabled majority “severely disabled”. I have also studied the disability experience from a socio-political, global and philosophical perspective. And while I consider myself an advocate for people who have been marginalized, excluded and devalued as a result of inhabiting bodies and minds deemed “abnormal”, I don’t consider myself an extremist. I try to weigh all sides. While I don’t expect to change the minds of those of you have endorsed the “Ashley treatment”, I do ask that you consider the same. Below is an article I came across that I believe is objective and well informed. Please if you are going to have a strong opinion, listen to more than just sensational news reports and extreme opinions.

http://ieet.org/index.php/IEET/more/corwin20070108/

A few things that are not addressed in this article:

It seems that many people think there are only two options for people who require personal support and in some cases medical technology to live, either to remain at home with parents until they can no longer look after them or live in an institution. Disabled people have fought long and hard for other options and today many, many disabled people, and yes, including those so called “severely disabled” are able to live IN the community with proper supports. This may include support which comes into the home, small group homes, or individualized funding that is controlled by the disabled person themselves depending on the needs and abilities of the person. It has been proven time and again that it is less expensive to provide support in the community than it is to warehouse people in institutions in often over medicalized environments.

Many disabled people provided with opportunities to learn, obtain training, education, proper technical aids and a barrier free environment (attitudes can be as much of a barrier as physical ones), are able to become contributing members of society in many different ways, including income earning, tax paying citizens.

You cannot possibly accurately predict the quality of a person’s life based on a diagnosis at birth. There are many factors that affect a person’s quality of life. How many of you know of perfectly “able-bodied” people who have a miserable quality of life? Doctors are often wrong in their prognosis of disabled embryos, infants and adults. When I was born, my parents were told that should I survive, I would likely be “severely retarded” and “severely deformed” (whatever that means). I am neither, thank you very much. My sister shared with me recently that my mother told her that when I was born she was told not to love me. It’s no wonder I felt so rejected by her. Parents hear these prognoses and take them to heart without challenge. Please always challenge.

Ashley has been turned into a living doll and I sincerely do not believe it is in her best interest. Furthermore, and perhaps more importantly, the impact of this procedure on the lives of disabled people in the future is terrifying – consider the slippery slope. I just cannot condone what was done to this child. It went far beyond just preventing menstruation.

So now that I’ve challenged you to consider another perspective, I will once again climb down from my soap box and thank you very much for reading.

[FONT=&quot]Respectfully, Utopia[/FONT]
 

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