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Over on the FB page, Justina did go on an outing with her family and extended family ...for a birthday party & even got a pedicure!
It's a miracle! Her feet & legs weren't blue and swollen!!! I'm also very happy to say she looks far far far removed from near death!!!!
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It is not uncommon for feet to swell when you're in a wheelchair, even if your heart and kidneys are fine, because the venous return is compromised due to the inactivity of the muscle pump.
Don't they give beta blockers for anxiety related heart palpitations? I just can not believe that Justina's heart and kidney function is not being regularly checked. She has probably reported many symptoms and her parents raise heck, so they know what the complaints are.
Do people really think that the Framingham facility wouldn't have been monitoring her health? They regularly deal with people with all kinds of problems and needs - and with the circus following this poor girl around you can bet that if there was a problem with they would have mentioned it to her physicians.
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The only disdain I see is for the obvious and gross exaggerations and histrionics employed by her father and the various political groups that have attached themselves to this poor girl's situation. Exaggerations like "torture", "near death", "dying", "medical experimentation", "fascists", "nazis", etc.
Is there a reason that you have such disdain for a girl who has been isolated for so long from her family, friends and school?
Was this girl in a wheelchair prior to becoming a ward of the state?
Yea, they do. Along with 10 or so other medical conditions. Oh, I can absolutely believe her cardiac and renal function may not be tested on a regular basis.
I hope you're right.
I hope you're correct, however, I'd never blindly trust the medical community to do the correct thing.
Just saying.
Hmmm...the disdain I see is from that particular medical facility toward a young woman and her family.
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Another year and Justina will be 21.
If, and a big IF, Justina only has somatoform disorder then I'm not so sure she'd be better off at home. She thinks she has a pretty bad disease or disorder that may kill her, and she has been exposed to stories of the girls with mito who have died. Her parents says she'll die without her meds, and invasive medical prodedures could lead to death as well as not eating, sitting around in a wheelchair, not bearing any weight on legs, etc. I hope they have at least gotten her back on the vitamin regiment, because what could it hurt.
I am not sure she is better off at home at all. All the histrionics surrounding WHATEVER dx she has cannot be good for her mentally. To constantly hear you are near death, you need x procedure, then to hear that your dr doesn't know what s/he is talking about (and then jumping to another doc, as was reported by her past pedi) NONE of it is supportive. I can imagine that whether Justina realizes it or not, that kind of atmosphere probably puts her in a constant state of anxiety about her health, her future, her ability to recover. This is probably why one of the doctors observed that she seems to deteriorate when her mother is with her and they are discussing her condition.
Was this girl in a wheelchair prior to becoming a ward of the state?
You may not realize it, but it's normal for feet to swell when you sit down for many hours on end- long car trip, office job, wheelchair, etc. Too bad no one has done her hair in a more becoming fashion, though.
Yes, that's why I mentioned causes of swollen feet and legs, such as long car or plane rides, or sitting in a chair of any sort for long periods.I noticed they were swollen by comparing them to the other girl's feet, theirs aren't swollen
If, and a big IF, Justina only has somatoform disorder then I'm not so sure she'd be better off at home. She thinks she has a pretty bad disease or disorder that may kill her, and she has been exposed to stories of the girls with mito who have died. Her parents says she'll die without her meds, and invasive medical prodedures could lead to death as well as not eating, sitting around in a wheelchair, not bearing any weight on legs, etc. I hope they have at least gotten her back on the vitamin regiment, because what could it hurt.
Apparently yes, off and on, although the degree of it hasn't been confirmed.
Apparently yes, off and on, although the degree of it hasn't been confirmed.