jjs
Waiting for justice...
- Joined
- Sep 9, 2016
- Messages
- 84
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I know this has been answered by a ton of people already, but I thought I'd throw my $.02 in as well, RE diabetes/ pumps/ CGMs.
My 9 year old is T1D. She was diagnosed at age 2 and has worn a pump since she was 3. She does all of her diabetes care herself: blood sugar checks, site changes, everything. The most I do is ask if she's checked her blood sugar or what it was or tell her to do a site change. That's it. She's done it so long that it's second nature to her, and she's also very independent, and with a disease that she has no control over, it offers her at least some form of control in how it's managed. She knows when she's low (she says her hands shake and she feels "kind of dizzy but different".) If she says she is low, she is definitely low. Highs are a different story. If she's high but not too high, she will say she is high and take care of it by giving herself a bolus (of insulin). However, if she is very high, that is different. She becomes argumentative, angry, temperamental over absolutely nothing. Screaming, crying, throwing things.
I too wonder how long Logan had been diagnosed for. If he hadn't been diagnosed for very long, there is a very real possibility that he could have "lost it" during a high-- however at some point he would have had to realize he was high and bolused himself, or they would likely have found him in DKA (diabetic ketoacidosis, which will cause a coma in short measure). The other thought I have is that if he hadn't been diagnosed for very long, being a teenager, losing that control over your life and food choices when you are used to having it can be a very hard thing to handle. I've been in Diabetic Parent groups on and off for years and I remember a parent with a newly diagnosed teenager (14? 15?) who literally hid under her bed to avoid having to deal with taking her shots. Several others who would say they were taking care of it but would not. And there is-- believe it or not-- a new eating disorder called "diabullimia" where diabetic kids will purposely keep their blood sugars high to lose weight (high blood sugar causes weight loss). So if he hadn't been diagnosed for very long, it's very possible that there were some power struggles over his diabetes. Even if he had been diagnosed for a long time, he *still* could have not been taking care of it due to teenage power struggles. In fact, this happens even to older people. My best friend in high school (who was T1D) passed away last week from not taking care of his blood sugar, and we are early 30s.
Who knows, he may have been diagnosed at 2 like my daughter and just lost it on his grandma for some reason completely unrelated, or it could have been a million other things. I don't want to blame this on diabetes (being a parent of a diabetic) but that possibility is there also. Just a shame, all around. His parents obviously care about him, as did his grandmother. RIP, Kristina. You sounded like a wonderful person and did wonderful work. My heart is breaking for the families on both sides. The parents have now lost a son as well as dad's mother. <3
My 9 year old is T1D. She was diagnosed at age 2 and has worn a pump since she was 3. She does all of her diabetes care herself: blood sugar checks, site changes, everything. The most I do is ask if she's checked her blood sugar or what it was or tell her to do a site change. That's it. She's done it so long that it's second nature to her, and she's also very independent, and with a disease that she has no control over, it offers her at least some form of control in how it's managed. She knows when she's low (she says her hands shake and she feels "kind of dizzy but different".) If she says she is low, she is definitely low. Highs are a different story. If she's high but not too high, she will say she is high and take care of it by giving herself a bolus (of insulin). However, if she is very high, that is different. She becomes argumentative, angry, temperamental over absolutely nothing. Screaming, crying, throwing things.
I too wonder how long Logan had been diagnosed for. If he hadn't been diagnosed for very long, there is a very real possibility that he could have "lost it" during a high-- however at some point he would have had to realize he was high and bolused himself, or they would likely have found him in DKA (diabetic ketoacidosis, which will cause a coma in short measure). The other thought I have is that if he hadn't been diagnosed for very long, being a teenager, losing that control over your life and food choices when you are used to having it can be a very hard thing to handle. I've been in Diabetic Parent groups on and off for years and I remember a parent with a newly diagnosed teenager (14? 15?) who literally hid under her bed to avoid having to deal with taking her shots. Several others who would say they were taking care of it but would not. And there is-- believe it or not-- a new eating disorder called "diabullimia" where diabetic kids will purposely keep their blood sugars high to lose weight (high blood sugar causes weight loss). So if he hadn't been diagnosed for very long, it's very possible that there were some power struggles over his diabetes. Even if he had been diagnosed for a long time, he *still* could have not been taking care of it due to teenage power struggles. In fact, this happens even to older people. My best friend in high school (who was T1D) passed away last week from not taking care of his blood sugar, and we are early 30s.
Who knows, he may have been diagnosed at 2 like my daughter and just lost it on his grandma for some reason completely unrelated, or it could have been a million other things. I don't want to blame this on diabetes (being a parent of a diabetic) but that possibility is there also. Just a shame, all around. His parents obviously care about him, as did his grandmother. RIP, Kristina. You sounded like a wonderful person and did wonderful work. My heart is breaking for the families on both sides. The parents have now lost a son as well as dad's mother. <3