Family battling Children’s Hospital to bring teen home for Christmas #2

[Linda7NJ]

I had to stop watching it because of my emotion. That poor girl. We see her go from genuine elation to being home with her family to obvious trauma in remembering her ordeal. She is telling the truth. They were mean to her, left her isolated, laughed at her. How evil.

It's not evil.
It's physical rehabilitation.
It's not torture.



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[Linda7NJ]

I don't know how anyone can listen to Justina tell her story, including the critics, and not feel for her. She was abused mentally and emotionally by professionals. There is no doubt based on the facts she presented. How horrible, and that should be illegal.

She's eating and not slurring. Quite an improvement from when she first went in.


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[Linda7NJ]

Lou IMO is certifiable!


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[Blue_Dolphin308]

With all due respect she is still a psych patient. Whatever she says should be taken with a grain of salt.



http://abcnews.go.com/Health/justina...inglePage=true

Excuse me. I hope you are not saying what I think you are saying! Psych patients shouldn't be believed??? This is how many psych patients become VICTIMS. Because society gives them NO credibility at all. This is psych patients can be raped. Because people wont believe them because they just got out of a psych hospital. I think you need to change the way you think, Psych patients deserve as much respect as anyone else!

 

[annahanna]

What makes you think they did not talk to her "regular" doc?

If they talked to him, it doesn't seem like they listened.

http://www.bostonglobe.com/metro/20...l-uncertain/Y7qvYTGsq8QklkxUZvuUgP/story.html

Children’s and the state had ignored Korson’s requests to be included in a roundtable meeting to discuss Justina’s care.

Now, after three months of asking, the Tufts doctor had finally gotten an invitation to visit the hospital to discuss Justina’s case.

There was also an article that I remember reading on WS that said that CPS didn't include Dr Korson's report in the evidence provided to the court.

I don't think they considered Mark Korson to be her "regular" doctor. Hospitals generally consider your "regular" doctor to be your GP or in the case of a child, Pediatrician. They did, in fact, contact her Pediatrician. They also obtained her records from Tufts and from her admission earlier that week to Ct Children's.

It is obvious that they did not discuss the matter extensively with Dr Korson. That may be because (as some media outlets reported) he was out of town. Or it may be because he has a reputation of having a higher then normal number of patients whose parents are suspected by other doctors of medical child abuse. Apparently he usually disagrees with the other doctors assessments.

It is more then a little disturbing (at least to me) that Dr Korson has had more then 40 cases where medical abuse suspicions were raised. He completed his Fellowship training in 2000 - so in 14 years, he has had 2 to 3 instances a year? All of Boston Children's, with over 1000 doctors on staff - including a highly respected Mitochondrial Disease team, has 8 to 16 cases per year. In other words, most of their doctors won't have a patient's family suspected of medical child abuse in their careers.

He recognized that occasionally abuse accusations against mito parents do turn out to be valid, but in his experience those have been relatively rare. Of the more than 40 mito cases where suspicions were raised about a parent of one of his patients, he supported the accusation in three cases.

**

Newton, who had worked in child protection for a dozen years, had an unusual dual appointment leading the teams of both Children’s and Mass. General. At Children’s, her team filed a formal request for the state to investigate — a maneuver called a “51A,” after the statute authorizing it — in about 400 cases a year. Most were parental neglect cases. Newton estimated that only 2 to 4 percent — or 8 to 16 cases a year — involved allegations of medical child abuse.

**

Just my opinion, but perhaps the much discussed Dr Korson is a large part of this problem?

** http://www.bostonglobe.com/metro/2013/12/15/justina/vnwzbbNdiodSD7WDTh6xZI/story.html

 

[MyBelle]

Excuse me. I hope you are not saying what I think you are saying! Psych patients shouldn't be believed??? This is how many psych patients become VICTIMS. Because society gives them NO credibility at all. This is psych patients can be raped. Because people wont believe them because they just got out of a psych hospital. I think you need to change the way you think, Psych patients deserve as much respect as anyone else!

Are children taken from unfit parents considered victims? Absolutely. They continue to be victims when their parents exploit them in the media.

JMO

 

[Linda7NJ]

Excuse me. I hope you are not saying what I think you are saying! Psych patients shouldn't be believed??? This is how many psych patients become VICTIMS. Because society gives them NO credibility at all. This is psych patients can be raped. Because people wont believe them because they just got out of a psych hospital. I think you need to change the way you think, Psych patients deserve as much respect as anyone else!

Not speaking for the other poster but I don't believe she ever meant to say PSY patients are too crazy to be believed.

What Justina was describing IMO was no doubt perceived as horrible and torture for HER. The reality is physical therapy isn't a cake walk. It takes encouragement like " you can do it" and "tough love" to leave her sitting in the hallway, hoping she would find the determination to push through it.

My very close friend had a very traumatic brain injury and had been in a coma for a long time. She required residential rehabilitative services. They're tough. Very tough. It would upset me greatly at the point when they wouldn't bring her breakfast or help her get dressed. The entire point was they wanted her to push herself.
If you coddle, you're enabling, no helping allowed. Thankfully, with the dedicated staff and team of doctors she is whole today.

My hope for Justina is one say she will be too. But I sincerely doubt it.

IMO they've done all they can do for her. Her parents still managed to not be supportive of her dual diagnosis and will IMO continue to hamper all efforts that are not in line with their own "treatment goals" & political aspirations of Lou.

I'm
Hoping he takes his dog and pony show on the road without Justina


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[MyBelle]

I don't think they considered Mark Korson to be her "regular" doctor. Hospitals generally consider your "regular" doctor to be your GP or in the case of a child, Pediatrician. They did, in fact, contact her Pediatrician. They also obtained her records from Tufts and from her admission earlier that week to Ct Children's.

It is obvious that they did not discuss the matter extensively with Dr Korson. That may be because (as some media outlets reported) he was out of town. Or it may be because he has a reputation of having a higher then normal number of patients whose parents are suspected by other doctors of medical child abuse. Apparently he usually disagrees with the other doctors assessments.

It is more then a little disturbing (at least to me) that Dr Korson has had more then 40 cases where medical abuse suspicions were raised. He completed his Fellowship training in 2000 - so in 14 years, he has had 2 to 3 instances a year? All of Boston Children's, with over 1000 doctors on staff - including a highly respected Mitochondrial Disease team, has 8 to 16 cases per year. In other words, most of their doctors won't have a patient's family suspected of medical child abuse in their careers.

**

**

Just my opinion, but perhaps the much discussed Dr Korson is a large part of this problem?

** http://www.bostonglobe.com/metro/2013/12/15/justina/vnwzbbNdiodSD7WDTh6xZI/story.html

BBM. I think the administrators of Tufts just might agree with you.

 

[annahanna]

Excuse me. I hope you are not saying what I think you are saying! Psych patients shouldn't be believed??? This is how many psych patients become VICTIMS. Because society gives them NO credibility at all. This is psych patients can be raped. Because people wont believe them because they just got out of a psych hospital. I think you need to change the way you think, Psych patients deserve as much respect as anyone else!

Psych patients shouldn't be blanketly believed or blanketly disbelieved. The individual situation and their diagnosis should be considered when evaluating the truthfulness of what they are saying. In this type of situation, a mentally handicapped child is likely to say whatever she is told to say to win her parents approval. She has been told by the people that she loves that the people that kept her parents away we're mean, bad, and evil. She is going to repeat that. I believe that is what MyBelle was saying.

 

[MyBelle]

Psych patients shouldn't be blanketly believed or blanketly disbelieved. The individual situation and their diagnosis should be considered when evaluating the truthfulness of what they are saying. In this type of situation, a mentally handicapped child is likely to say whatever she is told to say to win her parents approval. She has been told by the people that she loves that the people that kept her parents away we're mean, bad, and evil. She is going to repeat that.

BBM. Exactly. I'm betting she was never told that the reason she didn't move closer to home much sooner was because her father had threatened to sue the facility.

 

[annahanna]

BBM. I think the administrators of Tufts just might agree with you.

Just My Opinion, but they should.

If my kid had Mito or another metabolic disease, I would run the other way.

 

[Linda7NJ]

Psych patients shouldn't be blanketly believed or blanketly disbelieved. The individual situation and their diagnosis should be considered when evaluating the truthfulness of what they are saying. In this type of situation, a mentally handicapped child is likely to say whatever she is told to say to win her parents approval. She has been told by the people that she loves that the people that kept her parents away we're mean, bad, and evil. She is going to repeat that.

Absolutely agree one hundred percent.

IMO there isn't much more that could be done for Justina. It's really very very sad.
It does appear she's come a long long way from where she was on Feb 14th when first admitted at Boston's Children's hospital.



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[Donjeta]

JMO if the family wanted healing to begin they wouldn't have dragged Justina to interviews as soon as she was out of the facility.

They really haven't got a clue, have they?

 

[forthelost]

er Linda loaded up the car with her belongings, Justina said she couldn’t wait to get home to see her friends, play with her beloved dogs, soak in the swimming pool and enjoy lazy mornings lolling around in bed.

Wait a minute. If she has no feeling in her legs, why is she thinking about going in a swimming pool? (Yes, I know paraplegics can swim, but learning to propel yourself with only your arms when swimming is a long process.)

 

[Linda7NJ]

JMO if the family wanted healing to begin they wouldn't have dragged Justina to interviews as soon as she was out of the facility.

So should we expect Justina to be ice skating anytime soon?


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[Linda7NJ]

Wait a minute. If she has no feeling in her legs, why is she thinking about going in a swimming pool? (Yes, I know paraplegics can swim, but learning to propel yourself with only your arms when swimming is a long process.)

It's an above ground pool?
How's she even gonna get in it?




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[Donjeta]

http://abc7.com/news/sick-teen-heading-home-after-medical-custody-battle/121733/
Lou Pelletier said the family would "stick for now with" Tufts doctors, but would also "keep our options open." He said his top priority since the ruling is to get Justina in physical therapy, which he claims she never received at JRI.

"She hasn't had that and at some point, we need to do a full reevaluation medically," he said. "We need to find out what the damage is that has been done to her. She has been like a prisoner of war for 16 months."

Justina's statements about the alleged "abuse" are just that, statements. You can't possibly know that she is telling the truth unless you were present in the hospital during the incidents she is "describing." They are not necessarily facts. A number of her sentences were unfinished - as if she either thought better of saying what she planned or forgot what she was supposed to say. Just like the note that was "smuggled" out earlier this year, her complaints sound like a little girl whining about PT and OT being hard. Well useful PT and OT are hard. Regaining lost muscle strength and movement are difficult intensive processes. Not providing appropriate PT and OT - and the possibility of recovery - would be evil.

What Justina was describing IMO was no doubt perceived as horrible and torture for HER. The reality is physical therapy isn't a cake walk. It takes encouragement like " you can do it" and "tough love" to leave her sitting in the hallway, hoping she would find the determination to push through it.

sbm

Wait, what? They're both complaining that Justina did not receive physical therapy and that she did?

 

[CathyinTexas]

With all due respect she is still a psych patient. Whatever she says should be taken with a grain of salt.

Mark Korson of Tufts Medical Center, treat her for "persistent and severe somatic symptom disorder," a condition that acknowledges psychiatric as well as physical illness.

http://abcnews.go.com/Health/justina...inglePage=true

That means nothing to me. The judge who has made all the decisions orders a metabolic doctor to treat her for somatoform because psych doctors at BCH says she has this? Preposterous. How is he even qualified? Thank God the parents have full custody and this child is safely out of MA and away from this evil judge. All my opinion only.

 

[jaunty-girl]

sbm

Wait, what? They're both complaining that Justina did not receive physical therapy and that she did?

Yes, I was thinking the same thing. They can't keep their stories straight. I personally hope that they file a lawsuit and then all the supporters will see what a mess they really are.

 

[Linda7NJ]

sbm



Wait, what? They're both complaining that Justina did not receive physical therapy and that she did?

Amazing huh?


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