http://jme.bmj.com/content/31/11/641.full
Received 13 January 2005
Accepted 19 January 2005
Whether the law should permit individuals to opt out of accepted death standards is a question that must be faced and clarified
While media coverage of the Terri Schiavo case in Florida has recently refocused public attention on end of life decision making, another end of life tragedy in Utah has raised equally challengingand possibly more fundamentalquestions about the roles of physicians and families in matters of death. The patient at the centre of this case was Jesse Koochin, a six year old boy suffering from inoperable and incurable brain cancer. He had been undergoing care at Primary Childrens Medical Center in Salt Lake City since September 15, 2004 when his tumor pushed his brain stem down through the skull.1 Subsequently, two physicians independently determined that the child was brain dead and informed his parents that they would order life support removed within twenty four hours. Steve and Gayle Koochin overtly rejected the hospitals definition of death. The couple, relying on traditional notions of cardiopulmonary death, obtained a restraining order to keep Jesse on a ventilator and ultimately removed the brain dead child from the hospital. The ongoing case raises the complex question of whether patients families should be permitted to opt out of widely accepted definitions of death in favour of their own standards.