Family wants to keep life support for girl brain dead after tonsil surgery #1

[MyBelle]

The fact of the matter is... It's cheaper if she's brain dead.
A "persistent vegetative state" is very very expensive.

I don't blame the parents for questioning the motives and the word of the hospital and doctors. It seems these particular parents didn't have.a good understanding of the risks prior to their child's surgery and communication afterwards seems highly inflammatory.




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I agree. It was needlessly inflammatory and extremely insensitive. It will be interesting to see how this plays out. I don't believe any of us would want a hospital making the decisions about our child for us.

 

[gngr~snap]

My husband had this surgery a few years ago. I went with him for doctor visits and to hear it explained by doctors... It was "no big deal"
I knew better. I know there's a risk involved with any surgery. I begged my husband not to have it done. He had it anyway. Thankfully, he was fine and suffered no complications.

( they even removed his uvula! )


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Oh my! Thank goodness he did fine. Bless your heart! I know you must have utterly been in pieces during his post op recovery!

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[SophieRose]

Not sure if this has been mentioned, but it could be an explanation of what happened after the surgery. ..my friend's daughter had her tonsils removed when she was 8 years old. She almost died twice from bleeding post-Op. After being rushed to a children's hospital, she was diagnosed with a bleeding disorder called Von Willebrands disease, which is similar to hemophilia.

It's possible that this could have caused the massive bleeding in this case.

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I've got a relative with Von Willebrands who also nearly bled to dead after surgery. Since it's hereditary all the cousins in the family have been tested for it but no one else has it.

 

[gngr~snap]

I would not be suprised if they find out there was an underlying unknown condition that contributed to her demise.

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[MyBelle]

yeah, i edited my link request, but keep getting booted off-line. Stinkin' kids lol.
That's from my link. It's NOT a quote from Singer. It's a quote from the article. And he's not the hospital spokesperson, he's the hospital's lawyer. jmo

Singer is a paid p.r. flak for the hospital, "Mr. Fix it"

http://www.singersf.com/team/sam.html

 

[Karmady]

Singer is a paid p.r. flak for the hospital, "Mr. Fix it"

http://www.singersf.com/team/sam.html

yeah, google the plaintiff's lawyer. There's no room for mudslinging between those two. jmo

 

[Linda7NJ]

Oh my! Thank goodness he did fine. Bless your heart! I know you must have utterly been in pieces during his post op recovery!

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Truth be told... You know how men can be big babies? That ...to the tenth power
I love him, but I was ready to choke him by day 3 of recovery!


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[MyBelle]

I am utterly horrified at this whole thing. I've been reading and watching for days, and still cannot find peace with this, as I usually can with other things.

I could not bear to be the nurse for this girl's body...could not bear it. I admire those nurses who are doing something I would be unable to do, and do it well and wisely. They are truly a blessing for everyone in this circumstance.

Best-
Herding Cats

I can't remember where I read it but I did see an article where the family specifically mentioned the nurses and thanked them. This has to be a very difficult time for anyone who works at the hospital and has touched this child.

 

[gngr~snap]

I've got a relative with Von Willebrands who also nearly bled to dead after surgery. Since it's hereditary all the cousins in the family have been tested for it but no one else has it.

I found out 5 years ago I have a condition/inhereted immune deficiency and I cannot have a blood transfusion. I will go into anaphylactic shock (just like my mom did) if I get a blood transfusion. Had anything tragic happened - or if anything ever does I'm a goner. At least my family and I know that now.
It's the things you don't know when going into surgery that can cause grave conditions, but honestly is it anyone's fault for not knowing?
Honestly they can't test for everything before someone has surgery.
Moo

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[MyBelle]

I would not be suprised if they find out there was an underlying unknown condition that contributed to her demise.

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I agree, I think there is something more we don't know.

 

[shana]

Singer is a paid p.r. flak for the hospital, "Mr. Fix it"

http://www.singersf.com/team/sam.html

Yes, as the family calls him. :-/

CHO cannot speak for itself at this point. I will be VERY glad when it can, to clarify a lot of stories the family has promoted in its favor.

Meantime, I will wait to hear BOTH sides before declaring anyone likely - or possibly - at-fault.

~jmo~

 

[Linda7NJ]

yeah, google the plaintiff's lawyer. There's no room for mudslinging between those two. jmo

They're lawyers! Would anyone expect any less?


Honestly, I don't agree with the callousness of the actions of Children's Hospital.
I find it appalling.


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[MyBelle]

I found out 5 years ago I have a condition/inhereted immune deficiency and I cannot have a blood transfusion. I will go into anaphylactic shock (just like my mom did) if I get a blood transfusion. Had anything tragic happened - or if anything ever does I'm a goner. At least my family and I know that now.
It's the things you don't know when going into surgery that can cause grave conditions, but honestly is it anyone's fault for not knowing?
Honestly they can't test for everything before someone has surgery.
Moo

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You are right, of course. Even a tonsillectomy hasn't been a "routine" procedure in many years....

 

[momrids6]

I agree. It was needlessly inflammatory and extremely insensitive. It will be interesting to see how this plays out. I don't believe any of us would want a hospital making the decisions about our child for us.

California Law makes it the dcotors'/ hospitals' decision.

 

[LarkBunting]

With her grandmother being an experienced nurse, I really don't get what's going on here. She must cognitively understand the medical status of her granddaughter. As a nurse, she must know the meaning & repercussions of brain death. Is the family not listening to her? Is she also in serious denial?
Lord, please, let this poor child go to rest.


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[MyBelle]

Yes, as the family calls him. :-/

CHO cannot speak for itself at this point. I will be VERY glad when it can, to clarify a lot of stories the family has promoted in its favor.

Meantime, I will wait to hear BOTH sides before declaring anyone likely - or possibly - at-fault.

~jmo~

It's a business. I'm not a fan of big business whether they be mega hospitals or Enron.

The hospital has spoken and the words of the doctor were very insensitive.
I'm not swayed by the spin attempts by their paid spinmeister.

 

[Karmady]

They're lawyers! Would anyone expect any less?


Honestly, I don't agree with the callousness of the actions of Children's Hospital.
I find it appalling.


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Idk, the hospital personnel and the docs involved are people, too. People who have sacrificed immensely in many different ways to provide medical care for people who need it. Without getting into a dissertation on what it takes to be a medical professional and the potential real world consequences to them and their families, suffice it to say I can more than understand their profound frustration when dealing with this type of situation.
jmo

 

[MyBelle]

California Law makes it the dcotors'/ hospitals' decision.

Not quite in this case. It became a Judge's decision and his decision can be appealed.

 

[gngr~snap]

Being a nurse almost makes it harder to deal with loved one's illness. You know “a lot" yet "not enough".
I have always said, I am a nurse until it involves my loved ones. At that point I'm just a wife, mother or daughter.
moo

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[MyBelle]

They're lawyers! Would anyone expect any less?


Honestly, I don't agree with the callousness of the actions of Children's Hospital.
I find it appalling.


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I come from a family of lawyers and judges. The first one in this country dates to 1790. I will never forget the day my brother informed me that "all lawyers lie, the good ones don't get caught."