Interesting details:
https://www.epilepsy.org.uk/info/sudep-sudden-unexpected-death-in-epilepsy
What is my risk of SUDEP?
Like cot deaths, no one can say whether or not a person is in danger of SUDEP. But there is evidence that the risks are different for different groups of people.
If you have epilepsy, your risk is 1 in 1000
If you have frequent tonic-clonic seizures, you have an increased risk, particularly if they happen during sleep
If you are being considered for epilepsy surgery, you are considered to be at increased risk
If you have a drug or alcohol problem, your risk is higher than someone who doesn’t have these problems
If you have had a recent epilepsy-related injury or are being treated for depression, you are at increased risk
If you have absence or myoclonic seizures, you are not known to be at increased risk
If you have very few seizures, you are at a lower risk, but still at risk
Ways to reduce the risks of SUDEP if you have epilepsy
Seizure control
The most effective way to reduce the risk of SUDEP is to have as few seizures as possible.
If your seizures are not controlled, here are some ways to manage your epilepsy:
Always take your epilepsy medicines exactly as prescribed
Never stop taking your epilepsy medicines, or make changes to them, without talking to your doctor first
Make sure you never run out of your epilepsy medicines
Ask your epilepsy specialist or epilepsy nurse in advance what you should do if you ever forget to take your epilepsy medicines
Ask to be referred to an epilepsy specialist for a review of your epilepsy. They may be able to suggest changes to your epilepsy medicines, or other treatment options, which may include surgery
Try not to sleep on your stomach as recent research suggests that people with epilepsy who sleep on their stomach may be at higher risk of SUDEP