Ok, just to clear up a few misconceptions going on here, let me explain some things since I'm pretty well versed on this topic and have been very aware and concerned about this bill for some time.
Newborn screenings are already "mandatory"* in most (if not all?) states at this time and have been for a few years. However, some states test for far more than others. *you can opt out, but they make it a very humiliating process by reminding you of how your child could die and it would be all your fault.
I am totally in agreement with the fact that these screens do save lives because most of the issues tested for are metabolic disorders that can be treated through diet alone, yet would absolutely be tragically deadly if undetected.
I did have both of my children screened and I am VERY selective about screens and we do not vaccinate (not up for discussion, a cousin of mine was seriously brain damaged by a vaccine and was compensated by the VCF for her injuries, no one in our family vaccinates after that incident).
That said, this bill deeply, deeply disturbs me. I do not for one second think that there are any reasons good enough for the US government to own a copy of my childs DNA. When my children are screened, I fully expect those results to be a private matter between me and my HCP and I expect the cards to be destroyed before ever leaving the lab. Technology is moving so fast these days that today it might be considered harmless by some, but tomorrow there may be even more nefarious uses for something like this. Today I may not be afraid of genetic discrimination or being unfairly vetted out of this society, but tomorrow, next year, next decade, someone who does disagree with me or hate me for that matter may be in power and have access to the very code that makes up my body.
Also, being a mother who HAS had a homebirth, I have to clear up the notion that having a homebirth will get you out of this. First of all, if your midwife is at all licensed, she will be required by law to collect the screen or risk losing her license and being fined. There may be a loophole through signing a decline waiver, but what they're doing is making it impossible to get this very important screen done for your child without the option of leaving the DNA storage/ownership portion out.
The only way to truly get out of this would be to homebirth unassisted or with an unlicensed midwife (good ones do exist, especially in the states where assisting homebirth is illegal). But, you're also giving up the chance to have your newborn tested. It puts parents who disagree with the DNA portion in a very difficult position.
Also, at some point it is my belief that they will eventually require you to be screened and store your card in order to apply for a SSN. If that becomes an issue, it's like having to give up a piece of your body to be a citizen.
I am very upset at how this managed to become law with such little fanfare. This should be a major debate. Parents in the circles I frequent did know about this and were outraged, but we didn't realize there would be as much mainstream outrage as there apparently is. I guess we just thought more people knew about it.