Family battling Children’s Hospital to bring teen home for Christmas

[SilkySifaka]

I don't need to see her medical file to know that she has been diagnosed by BCH's doctors with a disorder for which there are no tests.
And by definition physiological reasons for symptoms need to be ruled out first.
These doctors in BCH saw her for period of days. Yet they somehow become so convinced she has somatoform, parents were forbidden from even seeking another opinion. Even though she was diagnosed by a reputable doctor with mitochondrial disorder. So, what gives?

"Doctors need to perform many tests to rule out other possible causes before they diagnose a somatoform disorder."
http://www.webmd.com/mental-health/somatoform-disorders-symptoms-types-treatment

Refusing to allow a second opinion tells me all I need to know about these so called doctors. Second opinions are necessary and vital in narrowing down difficult diseases

 

[CathyinTexas]

It has been over 14 months since Justina has been held captive with no civil rights. Here are her parents on Easter Sunday outside the facility where she is held.

https://www.youtube.com/watch?v=URayjHAws5c&feature=youtu.be

 

[Linda7NJ]

IMO this video says much about the family. It will be used as evidence against them. They certainly seem to relish the attention, don't they?
From nazi war criminals & atrocities to terrorists....


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[MCDRAW]

I don't know what causes BCH to be concerned, but Justina isn't the only child with some rare disease BCH reported to DCF and then stuck into a psychiatric ward.
I am providing a link about another child. Seems to be a very similar story. There are more of similar stories where BCH contacts DCF about a child with a rare disease claiming medical child abuse. DCF and judges seem to oblige.
I believe Elizabeth was eventually returned to her family, unlike Justina.

"However, the following Monday, they learned the hospital contacted Massachusetts Child Protective Services and urged them to file for temporary custody of Elizabeth and admit her to a psych ward at BCH, Wray claims."

http://bostinno.streetwise.co/2012/...-hopsital-custody-battle-pandas-pans-disease/

Cases like this should scare all parents. But for some reason people always think the parents must have done something wrong. My child was born with a heart defect. When she was about six, she had some things going on. So I took her back to the cardiologist. He taught me how to check her heart rate. He then tells us she doesn't need to come back. I couldn't stand him because he always treated me like I was stupid. I was born with a birth defect, hands, and apparently, he thought that affected my brain. My daughter is now 16 and I tell the pediatrician that I need to take her back just for a check up. So she brings me the paper he sent her. I hand it to my daughter and as I am driving down the road my daughter said, Mom he lied about you. I said, why? what does it say? He put in his records that I just couldn't learn to do her heart rate. He said, he had to teach my six year old. She knew that was a lie and so did my pediatrician. But he could have easily reported me to DHR and apparently they would have believed him. So I feel for this families pain. Children's services make mistakes all the time, just think of all those children that were abused and sent back home to eventually be killed.

 

[Gardenlady]

IMO this video says much about the family. It will be used as evidence against them. They certainly seem to relish the attention, don't they?
From nazi war criminals & atrocities to terrorists....


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This clearly shows how this has become yet another right wing drubbing point. I don't know whether it's unwittingly or wittingly, but the parents have clearly been subsumed into some right wing machine that is looking to make a bigger, anti-government, anti-social services point. Add to that the anti-psychiatry/psychology weirdoes, and it's all a circus. (Funny enough, he touts how he met with Michelle Bachman - she of the pray-the-gay-away camp! she's somehow a legitimizing factor, but actual trained medical doctors and scientists [because that's what psychologists are - like it or not psychology is a science and psychologists are trained and educated to the phD level] are discounted).

Oookay then. Circus away, folks. I guess it is easier to think that Children's docs, Mass DCF, the judge, the tufts docs who originally alerted on the parents, and CT DCF are all involved in some bizarre conspiracy, than it is to assume that maybe, just maybe they all saw something that these political haymakers - and us! - have not.


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[Gardenlady]

And no, really, these cases should absolutely NOT scare all parents. Cases in dispute like this do NOT make good proof of anything. And anytime anyone says "this should scare us all!" is the time when we should double down and be VERY careful as a public to not go off half cocked, making assumptions and basing decisions off of irrational fears. There's too much of that in this country as it is. This is why these outside political groups involving themselves in this should be run out of town. Their use of scare tactics and over the top language and comparisons to nazis are designed to play on your emotions and rile you up. Disgusting people using the basest of tactics to drive home some political point. Justina is a pawn to them in their larger agenda.


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[jjenny]

Oh really. Lets say you take your child to the hospital for some serious physical reasons your child is experiencing. The doctors there quickly diagnose your child with "somatoform." Even though there is no test for somatoform. Somatoform is a diagnosis of exclusion. All the other medical reasons need to be ruled out first.
Then they demand you treat your child fro somatoform, and not for whatever else your child was previously diagnosed with, or they will contact DCF and take your child way. And you can not get another opinion. That shouldn't scare all parents?

 

[jjenny]

This clearly shows how this has become yet another right wing drubbing point. I don't know whether it's unwittingly or wittingly, but the parents have clearly been subsumed into some right wing machine that is looking to make a bigger, anti-government, anti-social services point. Add to that the anti-psychiatry/psychology weirdoes, and it's all a circus. (Funny enough, he touts how he met with Michelle Bachman - she of the pray-the-gay-away camp! she's somehow a legitimizing factor, but actual trained medical doctors and scientists [because that's what psychologists are - like it or not psychology is a science and psychologists are trained and educated to the phD level] are discounted).

Oookay then. Circus away, folks. I guess it is easier to think that Children's docs, Mass DCF, the judge, the tufts docs who originally alerted on the parents, and CT DCF are all involved in some bizarre conspiracy, than it is to assume that maybe, just maybe they all saw something that these political haymakers - and us! - have not.


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MA DCF has a large number of well documented problems.
So I will have to disagree that I have to assume it's perfect and can do no wrong, given well documented evidence to the contrary.

 

[Linda7NJ]

I found mom's claims she has no idea why she can't visit her daughter ....next breath ...she does know exactly why...they've brought the circus to town....rather amusing.

It's crystal clear to me after watching that video... Children's concerns about these parents are founded and warranted. IMO


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[jjenny]

I found mom's claims she has no idea why she can't visit her daughter ....next breath ...she does know exactly why...they've brought the circus to town....rather amusing.

It's crystal clear to me after watching that video... Children's concerns about these parents are founded and warranted. IMO


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These parents are between rock and hard place. They can keep quiet, and they were mostly quiet under the gag order. They still didn't get the child back.
And they do have rights under constitution to free speech and assembly. So them using these rights shouldn't be a reason to not give them their child back.

 

[Linda7NJ]

These parents are between rock and hard place. They can keep quiet, and they were mostly quiet under the gag order. They still didn't get the child back.

And they do have rights under constitution to free speech and assembly. So them using these rights shouldn't be a reason to not give them their child back.

Jjenny

It's not the fact that they're talking, it's the content that I've having a huge issue with.

Do they have the right? Absolutely. I'll defend their right to keep on talking too.

My point is... It's going to be used against them. It sends up HUGE red flags all over the place. IMO.

Before ....I was unwilling to hop off the fence as I felt I didn't have enough information and the fact I'm not medically qualified to have an opinion...without medical records or the medical knowledge to draw an opinion...I had nothing.

This video ...changed that for me.

This video proves to me that there are genuine concerns that these parents fall into the "category of parents" that do doctor shop, do relish the attention, and do have a twisted interest in keeping this going to fill their own needs.
All IMO



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[jjenny]

They doctor shop? Is that illegal? If I go to the doctor, and don't like that doctor, should it be illegal to pick another one? It's freedom of choice, or not?
I don't have to personally like the parents, and neither does anyone else.
How does it justify taking their child?
And if liking the attention was a justification for taking children away, then we'd have to remove children from a whole lot of people.

 

[Gardenlady]

I HAVE brought one of my children in for serious issues. TO BOSTON CHILDRENS lol! Not only that, but it was for GI issues, which are usually a red flag for checking for medical abuse, since the claims can be vague and hard to pin down and easily misused either wittingly or unwittingly, nefariously or innocently, by parents! If there was some grand conspiracy going on there, my kid probably could have been a GREAT candidate for "kidnapping" and "torture" or whatever other thing you think all these docs are doing there!

Instead, as with any other experience I have had with children's in Boston, the care we received was excellent, caring, and always with a conservative medical approach, and with lots of emphasis on understanding the condition/parental support and follow up.

I'm sorry but I find 90% of the over the too, alarmist post on this thread to be so far out of the realm of reality that it borders on the hysterical.


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[Gardenlady]

MA DCF has a large number of well documented problems.

So I will have to disagree that I have to assume it's perfect and can do no wrong, given well documented evidence to the contrary.

Have you read the full audit? None of the problems cited has anything at all to do with unwarranted removal of children. They have to do with privacy concerns and UNDERstaffing (ie - not being able to make necessary follow ups to children who need it)!


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[Linda7NJ]

Cases like this should scare all parents. But for some reason people always think the parents must have done something wrong. My child was born with a heart defect. When she was about six, she had some things going on. So I took her back to the cardiologist. He taught me how to check her heart rate. He then tells us she doesn't need to come back. I couldn't stand him because he always treated me like I was stupid. I was born with a birth defect, hands, and apparently, he thought that affected my brain. My daughter is now 16 and I tell the pediatrician that I need to take her back just for a check up. So she brings me the paper he sent her. I hand it to my daughter and as I am driving down the road my daughter said, Mom he lied about you. I said, why? what does it say? He put in his records that I just couldn't learn to do her heart rate. He said, he had to teach my six year old. She knew that was a lie and so did my pediatrician. But he could have easily reported me to DHR and apparently they would have believed him. So I feel for this families pain. Children's services make mistakes all the time, just think of all those children that were abused and sent back home to eventually be killed.

I'm am really really sorry that happened to you. There is no shortage of asshat doctors and certainly DCF has more than their fair share of incompetent employees IMO

It's coming together in such a way, in this case, that I now believe the parents are the direct cause of 99% of their problems and may even be the cause of their daughters. The concern that they have a negative effect on their daughters health, is a fair one. IMO
IMO I do not see some vast conspiracy to kidnap their child to be a lab rat in some study.


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[jjenny]

Have you read the full audit? None of the problems cited has anything at all to do with unwarranted removal of children. They have to do with privacy concerns and UNDERstaffing (ie - not being able to make necessary follow ups to children who need it)!


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So, DCF needs more funds and their problems will go away?
But by some estimation, they spend around 2 million for Justina's case alone.
She wasn't even a resident of MA.
So how much money can one throw at them if they spend millions on one case?
And as far as I am concerned, for no apparent reason.
And if they were so concerned about Justina, they should have asked CT DCF to investigate, instead of sticking her into secure psychiatric ward.

 

[jjenny]

I'm am really really sorry that happened to you. There is no shortage of asshat doctors and certainly DCF has more than their fair share of incompetent employees IMO

It's coming together in such a way, in this case, that I now believe the parents are the direct cause of 99% of their problems and may even be the cause of their daughters. The concern that they have a negative effect on their daughters health, is a fair one. IMO
IMO I do not see some vast conspiracy to kidnap their child to be a lab rat in some study.


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Justina has been separated from the parents for over year. Her problems didn't go away. So, I am sorry, that dog don't hunt.

 

[Gardenlady]

CT DCF was asked to take the case, Waited months to respond, and decided to wash their hands of Justina. MA DCF also tried to get her placed in CT, closer to home, but that fell through when facilities refused to take her due to the circus surrounding it all!



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[jjenny]

CT DCF was asked to take the case, Waited months to respond, and decided to wash their hands of Justina. MA DCF also tried to get her placed in CT, closer to home, but that fell through when facilities refused to take her due to the circus surrounding it all!



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Well, as long as they tried. Bottom line, your DCF will never have enough money if they spend millions on one child, who lives out of state, and shouldn't be under their jurisdiction being a resident of another state.
Therefore, I wouldn't give them a penny, if it was up to me.

 

[Gardenlady]

So, DCF needs more funds and their problems will go away?

But by some estimation, they spend around 2 million for Justina's case alone.

She wasn't even a resident of MA.

So how much money can one throw at them if they spend millions on one case?

And as far as I am concerned, for no apparent reason.

And if they were so concerned about Justina, they should have asked CT DCF to investigate, instead of sticking her into secure psychiatric ward.

Oversimplification. Funds = all better, no. the point is that "ma DCF has documented problems!", while true, is irrelevant since the audited problems have nothing to do with what's going on in Justina's case.

And understaffing I would guess is a problem in many, many states. Unfortunately there are more abuse/neglect cases than can reasonably be kept up with.



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