Family battling Children’s Hospital to bring teen home for Christmas

[MyBelle]

In the video accompanying the second part Globe article there is a shot of an official document titled Child Abuse/Neglect Emergency Investigation, dated 2/22/13. Unfortunately the bulk of the document shown is blurred out, but the reporter does focus on one part which says:

"the (Connecticut) pediatrician stated that the parents encourage multiple medical diagnosis and multiple medical problems. They have fired multiple doctors in the past."

I think its written in the article as well.

I just get the feeling they have burned too many bridges in Connecticut.

This is a link to Part One. Get to Part Two from there after you have read Part One.

It is a must read, imo. It is a very good unbiased report. It is NOT an opinion piece.

http://www.bostonglobe.com/metro/2013/12/15/justina/vnwzbbNdiodSD7WDTh6xZI/story.html

Both are balanced, objective articles. In one of them, it mentions the family was getting an apartment in Mass. I doubt CT will take jurisdiction if neither of the parents is living there or working there.

 

[forthelost]

I've said, I do not believe Tufts initiated and recommended she be transferred to another hospital, via ambulance.. during a blizzard ...for flu symptoms.

Not when Tufts is three hours away and they are within minutes of Yale-New Haven, one of the best hospitals in the country.

 

[MyBelle]

Yes. It's the bit that suggested to me the parents were less than truthful.

I've repeatedly said it is possible the parents are entirely right in this case. Is anyone who is in support of the parents going to say it's possible BCH is right about something?

Both parents come across as people who will never admit they are wrong even when there is proof they are wrong. I think Justina is so damaged from many years of her mother's severe domination and control that she may never fully recover. Her way of coping is to get "sick" and let Mommy take "care" of her. Maybe the psych unit offers some kind of family plan.

JMO

 

[MyBelle]

Not when Tufts is three hours away and they are within minutes of Yale-New Haven, one of the best hospitals in the country.

I think it is entirely possible Tufts handed them off to BCH in an effort to get rid of them. Making difficult people somebody else's problem is an ancient management technique. Quite effective. Their child was the patient but no doctor receives additional compensation for the time consumed by ridiculously over-bearing parents.

JMO

 

[Linda7NJ]

Yes. It's the bit that suggested to me the parents were less than truthful.

I've repeatedly said it is possible the parents are entirely right in this case. Is anyone who is in support of the parents going to say it's possible BCH is right about something?

Absolutely, it's my understanding that BCH was even giving her the mito cocktail.
BCH removed other medications to treat symptoms there was no evidence of.
There had been mental treatment component as part of her treatment plan back in Connecticut that the parents chose to ignore.
Seems to me BCH bent over backwards to include the parents as part of the team. Unfortunately, the parents believe they have all the answers.

Also noted from that article she had been unable to walk and in wheelchair for weeks before going to BCH.





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[Linda7NJ]

I think it is entirely possible Tufts handed them off to BCH in an effort to get rid of them. Making difficult people somebody else's problem is an ancient management technique. Quite effective. Their child was the patient but no doctor receives additional compensation for the time consumed by ridiculously over-bearing parents.



JMO

I can imagine Tufts putting her in that ambulance and shutting down the border / turning off all the lights ....as soon as the family crossed the border ! lol


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[i.b.nora]

I think it is entirely possible Tufts handed them off to BCH in an effort to get rid of them. Making difficult people somebody else's problem is an ancient management technique. Quite effective. Their child was the patient but no doctor receives additional compensation for the time consumed by ridiculously over-bearing parents.

JMO

I couldn't agree more and I have thought that a very high possibility from early on. Something about some little nuanced thing that Korson said (don't remember if it was an article, or a video interview) but it just made me say, aha! He is trying to get rid of them. I still feel it.

And, you all know that Korson actually had previously been employed by Boston Children's Hospital (the research and teaching hospital run by Harvard)?

He is originally from Canada where he got his medical degree at University of Toronto in 1982. From 1986 to 1990 he did a Genetics and Metabolism Fellowship at Boston Children's. And then, from 1990 to 2000, he was Director of Inborn Errors of Metabolism Service at Boston Children's. Then he went to Tufts, says he, for a position that gave him more autonomy. I believe Floating Hospital at Tufts is also a teaching and research hospital.

 

[MyBelle]

I can imagine Tufts putting her in that ambulance and shutting down the border / turning off all the lights ....as soon as the family crossed the border ! lol


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lol. I'm also betting Tufts didn't make a courtesy call to BCH letting them know teen and her obnoxious mother were on the way. Did you catch the exchange between Justina and Mommy after the contentious call with the social worker who told them she wouldn't be discharged to their care? The teen's response to "That's all you have to know" is "You're the best Mommy." She is totally clueless that her mother is the reason she's still there and has no intention of keeping her promise. It's everybody's fault but Mommy's. Talk about putting the fun into dysfunction...

Linda wiped the tears from her eyes and reached to grab the phone. Lou held on to it long enough to announce the hand-off. “Mommy’s here,” he said, “one second.”

“Mommy?”

“Everything’s going to be fine,” Linda said, regaining her composure. “OK? That’s all you have to know.”

“You’re the best mommy. . . . I love you so much,” Justina said.

 

[MyBelle]

I couldn't agree more and I have thought that a very high possibility from early on. Something about some little nuanced thing that Korson said (don't remember if it was an article, or a video interview) but it just made me say, aha! He is trying to get rid of them. I still feel it.

And, you all know that Korson actually had previously been employed by Boston Children's Hospital (the research and teaching hospital run by Harvard)?

He is originally from Canada where he got his medical degree at University of Toronto in 1982. From 1986 to 1990 he did a Genetics and Metabolism Fellowship at Boston Children's. And then, from 1990 to 2000, he was Director of Inborn Errors of Metabolism Service at Boston Children's. Then he went to Tufts, says he, for a position that gave him more autonomy. I believe Floating Hospital at Tufts is also a teaching and research hospital.

I agree, there is a very distinct nuance in the articles linked when he grew frustrated at the parents' daily calls. It must have seemed like he was living Groundhog Day.

 

[Donjeta]

lol. I'm also betting Tufts didn't make a courtesy call to BCH letting them know teen and her obnoxious mother were on the way. Did you catch the exchange between Justina and Mommy after the contentious call with the social worker who told them she wouldn't be discharged to their care? The teen's response to "That's all you have to know" is "You're the best Mommy." She is totally clueless that her mother is the reason she's still there and has no intention of keeping her promise. It's everybody's fault but Mommy's. Talk about putting the fun into dysfunction...

Linda wiped the tears from her eyes and reached to grab the phone. Lou held on to it long enough to announce the hand-off. “Mommy’s here,” he said, “one second.”

“Mommy?”

“Everything’s going to be fine,” Linda said, regaining her composure. “OK? That’s all you have to know.”

“You’re the best mommy. . . . I love you so much,” Justina said.

It mostly sounds like a dramatization for effect to me. The article was published in December. Nobody is going to remember a phone call from July verbatim when they're interviewed for a December article. If anyone remembers any phone call verbatim, ever

 

[MyBelle]

It mostly sounds like a dramatization for effect to me. The article was published in December. Nobody is going to remember a phone call from July verbatim when they're interviewed for a December article. If anyone remembers any phone call verbatim, ever

I believe both calls were recorded by the state.

 

[Morag]

I think it is entirely possible Tufts handed them off to BCH in an effort to get rid of them. Making difficult people somebody else's problem is an ancient management technique. Quite effective. Their child was the patient but no doctor receives additional compensation for the time consumed by ridiculously over-bearing parents.

JMO

This!

I was working in a downtown travel office, and one of our frequent 'clients' was nuts, used to come in demanding tickets for the tunnel to Europe, or to arrange a cruise with Prince Ranier. I would pretend to look in the computer, and then tell her that her reservations were being held by (a rival) travel agency up the street. That worked quite a few times.

 

[MyBelle]

This!

I was working in a downtown travel office, and one of our frequent 'clients' was nuts, used to come in demanding tickets for the tunnel to Europe, or to arrange a cruise with Prince Ranier. I would pretend to look in the computer, and then tell her that her reservations were being held by (a rival) travel agency up the street. That worked quite a few times.

An essential tool to have in one's nut basket, no? lol:floorlaugh:

 

[jjenny]

I can imagine Tufts putting her in that ambulance and shutting down the border / turning off all the lights ....as soon as the family crossed the border ! lol


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Considering Tufts never put her in an ambulance-she came from CT, not Tufts, that's kind of a bizarre statement to make. And what border do you think they crossed? Tufts is in Boston, so is BCH.

 

[jjenny]

Both are balanced, objective articles. In one of them, it mentions the family was getting an apartment in Mass. I doubt CT will take jurisdiction if neither of the parents is living there or working there.

DCF claims it's working hard to return her to CT. Judge ordered DCF to work hard and return her to CT.
Some people here claim they read his ruling.
So that is a known fact.

 

[Linda7NJ]

Considering Tufts never put her in an ambulance-she came from CT, not Tufts, that's kind of a bizarre statement to make. And what border do you think they crossed? Tufts is in Boston, so is BCH.

It was a joke.


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[MyBelle]

DCF claims it's working hard to return her to CT. Judge ordered DCF to work hard and return her to CT.
Some people here claim they read his ruling.
So that is a known fact.

It is not a fact in dispute. Of course MA is working hard to return her to CT. It's not up to MA, it is up to CT. It is right in the ruling that some of us did actually read.

 

[jjenny]

Yes. It's the bit that suggested to me the parents were less than truthful.

I've repeatedly said it is possible the parents are entirely right in this case. Is anyone who is in support of the parents going to say it's possible BCH is right about something?

Anything is possible but that is neither here nor there.
By the way is it not possible that DCF isn't being entirely truthful here?
Considering that MA DCF has had numerous problems that are well documented. Here is a recent case DCF is in trouble for.

"Roche also provided new details about the supervisor who was fired earlier this month, saying she entered “false information” on reports about the family. Roche said that the supervisor reported in September that the Oliver family’s new apartment was clean, without hazards, and adequately furnished, even though no one from the agency had ever visited the apartment."

http://www.bostonglobe.com/metro/20...-came-light/pwWDTCrHglDpiwnOabZgQM/story.html

 

[jjenny]

From the article I linked

"Although he had given Justina a “working” diagnosis of mito, he acknowledged he couldn’t be 100 percent sure. "




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And? Is BCH a 100% sure that Justina has somatoform? There is no test for it.

 

[jjenny]

At this point the child is fully covered by Medicade.
As well as whatever insurance her parents have. Her parents insurance would be considered her primary insurance and billed first. Whatever is left will be paid by Medicade.
Their parental rights have not been terminated.

All IMO


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She is in custody of DCF. Therefore her parents insurance will not be billed for the enormous amounts of money DCF has spend to keep her in a secure psychiatric ward.