Hi Jane,
I thought I'd study Long QT since Lauren had this syndrome. Long QT is often misdiagnosed as epilepsy. Some new research suggests Long QT may even be a form of epilepsy. Both of them can cause seizures and Long QT can cause heart failure.
We in the media did not adequately study Long QT when we reported on Lauren's condition that night. Her mind may have been much sharper than we gave credit for. And, yes it is neurology. If a Long QT patient receives a new heart she will still have Long QT because the problem is caused by wrong signals to the heart. Many have speculated that Lauren couldn't still be alive without her prescription. So, I looked up beta blockers and found there are natural beta blockers that you can buy without a prescription. So, there still is hope that this girl may be alive.
JACOBITE -I am sitting here next to a PEDIATRIC CARDIOLOGIST WHO DISPUTES NEARLY EVERY WORD YOU SAY.
1. Long QT is only occasionally misdiagnosed as epilepsy.2. Long QT is NOT a form of epilepsy. The Pediatric cardiologist says, show him the research and he'll be happy to read it. 3. Long QT doesn't ever cause heart failure. Someone who is having a cardiac arrest can have a secondary seizure due to lack of oxygen delivery to the brain. It is not a primary seizure, as in epilepsy. 4. If you get a new heart your Long QT is cured. 5. The problem is caused by the cells in the heart and their regulation of potassium, calcium and sodium. It's not neurologic - it's cardiac. The only connection between Long QT and seizures is that a patient having a cardiac arrest for any reason can have a seizure, as mentioned earlier, due to lack of oxygen. 6. As for Beta Blockers, people can live fortuitously without medication. A BB can help or not help. Any BB bought over the counter would be so weak it wouldn't matter.
This is the 2nd time I've had to enlist this pediatric cardiologist to dispute false medical information you've stated here. I would appreciate it if you would stop doing this. I gather you are captivated by this case, as we all obviously are. But false speculation doesn't help anyone understand what truly happened to Lauren.