Kyron's doctors appointment

[human]

Good point. I guess I am assuming that she was exaggerating.

But if she's not -- well, does that mean he did get in a daze and just wander into someplace he shouldn't? And nobody can tell the truth because there's nothing to tell?

As I said before, would a loving caring mother leave a child in a chaotic atmosphere, an atmosphere that is identified as such by Terri herself.

A child that she has noticed having issues in the last couple of weeks? A child that SHE feels may be having seizures?

 

[human]

Why make you sick?

If a doctor told you he suspected your child had [fill in the blank], would you go online to look up the condition, symptoms, treatments, etc.?

It will be interesting to see if and WHEN she looked up the info, if she did.

 

[BringKyronHome]

this past year, a child in a teacher's classroom was having what the teacher felt might be absence. The teacher had another more qualified staff person come and observe the child with the parent's permission.

Info was documented. Then a conference was held with the parent and staff members, getting the parents input.

The parent then made an appointment with a some kind of specialist doctor.

It took at least a couple of months to get into the specialist here.

I forget what the outcome was.

But if the school is involved here, it's more than filling out a piece of paper as it would have to be another staff member involved, I feel.

It would be hard for the teacher to focus on Kyron exclusively to gather the info necessary on how often, length, when, etc.

I'm not saying that she didn't have an appt; that would be insane for her alibi if she didn't. I just think if there was this concern, there would be more staff involvement.

It sounds as though the paperwork being filled out came from the doc...there may or may not have been additional documentation & processes going on within the school...that we havent' heard, but I would be surprised if there wasn't something more to that...afterall Kaine even mentioned 'working' with school to help Kyron better follow directions.

I totally expect that he has an IEP in place, and if not, that Kyron was in the process of being evaluated to execute one.

I've had this impression long before this latest news, jsut based on random comments that have been mentioned about his 'personality'...

 

[Shrewish]

My daughter was diagnosed with absence seizures, but what alerted the teacher was the staring and seeming to be out of it, and failure to comply with simple requests and confusion about the requests. At first we thought it would be ADD, but it turns out it was epilepsy.

There would be no reason to go to the ER for simple absence seizures. Most children outgrow them (my daughter has, thankfully) and she has thus far navigated adolescence without any seizure activity reoccurring, thank goodness.

Just as an FYI, one simple diagnostic tool is to have the child mildly hyperventilate and see if it occurs. My pediatrician used a pinwheel, and encouraged my daughter to keep blowing it, and then her staring spell came on. They did the same thing during her brain scan, and the neurologist said she was textbook.

About 20% of children with absence seizures will, once medicated for them, develop another, more severe form of seizure activity. My daughter had a few of those episodes while the neurologist was tweaking her medications.
Not that I am suggesting that anything like this happened to Kyron, but it does make me go "Hmmm."

 

[BetteDavisEyes]

ah good point. someone on this thread (or the email one that's locked) said their child experienced sleep disturbance d/t partial seizures occurring at night.

Each of us recalls certain things when we watch interviews, press conferences, etc. There are comments/statements that strike me as odd, for whatever reason, while other folks might not find them unusual. I couldn't help thinking that a child's need for so much sleep seemed excessive and wondered what the reason could be. Was it a household rule that Kyron had to go to bed at a specific time each night, or was the boy actually so tired that he needed this much sleep? Learning about the possibility of a seizure disorder today provided a possible explanation for this, but I have to wonder now why this was not looked into earlier by Kyron's parents. The comments about the long hours of sleeping along with Kyron staying in his bed until someone came to get him raises some questions for me. jmo

 

[BringKyronHome]

I am shocked that if took that long to get your son in, and I am sorry I cannot imagine the worrying you did in that time span.

What I was trying to say is that I have never filled out pre-appointment paperwork on seizure disorders because there was no appointment. In most cases, a child has a seizure or is thought to have had a seizure is taken to the ER and therefore no pre-appointment paperwork. I have had to fill out paperwork for medication changes but this is after the seizure disorder is diagnosed. From my experience there I have never had to fill out pre-appointment paperwork. There have been questionaires for follow-ups.

Sorry for the confusion and I hope your son is doing ok.

I have NEVER been to the ER with my son for a seizure. The most I have ever been counseled of raising the 'alarm' is if his processing or disrupted processing affects his health in some way to contact the neuro on call asap. In our case, the worst thing that ever happened was that he 'forgot' what to do when he was hungry...so after some length of time without his 'processing' beeing restored, we'd end up in a dehydrated or LBS state.

Trust me, not all seizures are emergencies - it's just that simple.

And it sounds to me as though they were tryign to rule OUT seizures, but that they were leaning more toward ADHD...however, in my totally unexperienced opinion, from the way she desribed the 'spacing' it does not sound like typical ADHD distraction/daydreaming...

 

[Calliope]

It will be interesting to see if and WHEN she looked up the info, if she did.

Lord help me if LE ever dug into my search history on the computer =\

Before I plan my big heist (or whatever crime of the century I decide upon), I best just throw away my laptop.

 

[Calliope]

My daughter was diagnosed with absence seizures, but what alerted the teacher was the staring and seeming to be out of it, and failure to comply with simple requests and confusion about the requests. At first we thought it would be ADD, but it turns out it was epilepsy.

There would be no reason to go to the ER for simple absence seizures. Most children outgrow them (my daughter has, thankfully) and she has thus far navigated adolescence without any seizure activity reoccurring, thank goodness.

Just as an FYI, one simple diagnostic tool is to have the child mildly hyperventilate and see if it occurs. My pediatrician used a pinwheel, and encouraged my daughter to keep blowing it, and then her staring spell came on. They did the same thing during her brain scan, and the neurologist said she was textbook.

About 20% of children with absence seizures will, once medicated for them, develop another, more severe form of seizure activity. My daughter had a few of those episodes while the neurologist was tweaking her medications.
Not that I am suggesting that anything like this happened to Kyron, but it does make me go "Hmmm."

Interesting! Thanks

 

[carbuff]

As I said before, would a loving caring mother leave a child in a chaotic atmosphere, an atmosphere that is identified as such by Terri herself.

A child that she has noticed having issues in the last couple of weeks? A child that SHE feels may be having seizures?

I'm not going to claim that she's a candidate for mother of the year

 

[Calliope]

Each of us recalls certain things when we watch interviews, press conferences, etc. There are comments/statements that strike me as odd, for whatever reason, while other folks might not find them unusual. I couldn't help thinking that a child's need for so much sleep seemed excessive and wondered what the reason could be. Was it a household rule that Kyron had to go to bed at a specific time each night, or was the boy actually so tired that he needed this much sleep? Learning about the possibility of a seizure disorder today provided a possible explanation for this, but I have to wonder now why this was not looked into earlier by Kyron's parents. The comments about the long hours of sleeping along with Kyron staying in his bed until someone came to get him raises some questions for me. jmo

ITA

Thanks for bringing it up. I hadn't heard the '12 hour' comment until someone mentioned it today.

As far as not being evaluated sooner, it's probably one of those things where --- taken alone --- each of his behaviors may not raise red flags, but if considered as a whole then you have that "ah HA!" moment. These seizures can be so subtle, I'm not surprised that it was apparently overlooked for a time. As I said on the other thread, it may have been that Kyron was in to see the doc for another reason, and Terri made offhand mention of a few of these symptoms which the doc picked up on as possible seizure activity. It's also possible that with her being a teacher, she was more inclined and in tune to notice same.

 

[carbuff]

It sounds as though the paperwork being filled out came from the doc...there may or may not have been additional documentation & processes going on within the school...that we havent' heard, but I would be surprised if there wasn't something more to that...afterall Kaine even mentioned 'working' with school to help Kyron better follow directions.

I totally expect that he has an IEP in place, and if not, that Kyron was in the process of being evaluated to execute one.

I've had this impression long before this latest news, jsut based on random comments that have been mentioned about his 'personality'...

Yes, I agree -- it seemed to be something that was in process and possibly in the early stages. Something about the context of the "paperwork" conversation made me think it was probably the forms to initiate the IEP.

And that remark of Kaine's sounded like he thought it was a discipline issue...

 

[Calliope]

Yes, I agree -- it seemed to be something that was in process and possibly in the early stages. Something about the context of the "paperwork" conversation made me think it was probably the forms to initiate the IEP.

And that remark of Kaine's sounded like he thought it was a discipline issue...

That he wasn't listening in school?

It may have been another sign of possible seizure activity.

 

[carbuff]

That he wasn't listening in school?

It may have been another sign of possible seizure activity.

Yes.

I meant that the way Kaine phrased that comment about working with the school on his listening skills, just struck me as maybe not really understanding there might be a medical issue. Totally an impression on my part.

 

[kimmera]

If you know that your precious step son may have issues with seizures, do you leave him in a chaotic atmosphere off to walk to his classroom alone?

Not to mention, class didn't even start until 10:00...and she basically left him there to wander around by himself for over an hour? Am I the only one that finds this odd? :waitasec: JMHO.

 

[human]

It sounds as though the paperwork being filled out came from the doc...there may or may not have been additional documentation & processes going on within the school...that we havent' heard, but I would be surprised if there wasn't something more to that...afterall Kaine even mentioned 'working' with school to help Kyron better follow directions.

I totally expect that he has an IEP in place, and if not, that Kyron was in the process of being evaluated to execute one.

I've had this impression long before this latest news, jsut based on random comments that have been mentioned about his 'personality'...

I imagine that Skyline's IEP process would be the same as ours. We quit taking referrals sometime in April because there is not enough time to do all of the required paperwork and testing before school is out.

In our district, neither ADHD or epilepsy qualify for an IEP as they are considered medical conditions. I have a feeling that is pretty standard across the US.

A medical condition could get a 504 plan, which is different than an IEP and much easier to accomplish as to receive special education services, the criteria are pretty stringent.

Whether or not he already has an IEP in place is anyone's guess, but there would not be enough time to have an IEP review June 11.

However, anyone in my district who can afford to can go to private faciities which may or may not be covered by insurance.

Or, we have free services for people who qualify for the services which have been funded by a donor. Portland may have those as well.

 

[human]

Lord help me if LE ever dug into my search history on the computer =\

Before I plan my big heist (or whatever crime of the century I decide upon), I best just throw away my laptop.

O/T I have discussed this with you before. We will raise your defense fund here if we determine after thousands of pages of discussion that you are innocent.

Perhaps we will have a poll on it.

 

[BetteDavisEyes]

Yes.

I meant that the way Kaine phrased that comment about working with the school on his listening skills, just struck me as maybe not really understanding there might be a medical issue. Totally an impression on my part.

I agree. What Kaine interpreted as Kyron not listening to or following directions may not have been a behavioral or disciplinary issue at all. If Kyron was experiencing periodic seizures, he probably wasn't totally aware of what was going on around him. I also considered the possibility that Kyron might have had a hearing difficulty that needed to be addressed. jmo

 

[cluciano63]

Not to mention, class didn't even start until 10:00...and she basically left him there to wander around by himself for over an hour? Am I the only one that finds this odd? :waitasec: JMHO.

I believe the kids were supposed to gather at nine and form the little groups to tour the projects.

 

[Calliope]

Yes.

I meant that the way Kaine phrased that comment about working with the school on his listening skills, just struck me as maybe not really understanding there might be a medical issue. Totally an impression on my part.

I agree

 

[Calliope]

O/T I have discussed this with you before. We will raise your defense fund here if we determine after thousands of pages of discussion that you are innocent.

Perhaps we will have a poll on it.

Think you can raise $350K ???

:floorlaugh: