Here's where I'm stuck...
Alzheimers is progressive
Gene had a pacemaker and needed medication so he was being seen by a doctor.
Betsy was the sole caregiver and would have been in touch with his medical team.
How would a medical team allow a person in his state,which would have been diagnosed, to only be cared for by a non medical professional?
Alzheimers is progressive. For it to be at that late of a stage he obviously couldn't care for himself and requires round the clock care.
In the US you can have a family memeber be your primary care giver but it is still regulated with regular checkins. Given the passage of time and lack of communication it does not appear this was the case.
How could a person on medications and with his level.of disease be taken so far off the grid with zero check ins or regulations
I think becky was just blinded by her love and devotion
The space heater on the floor tells me she had a fever with chills. Gives.me some hope she was so delirious that she went quick. Maybe I. The only one here but if she kept suffering for days I can't imagine how painful it was as a caregiver to be so far incapacitated you couldn't help
As others have said, I'm not sure a physician would intervene if the caretaker appeared competent, said everything was being handled, and said they had friends in the area they could call on if necessary. (I don't know that she said that but it was probably true. Lots of people in the Santa Fe area are speaking up.,)
We don't really know how advanced the effects of Gene's Alzheimer's were on his behavior in the last few months. We don't know how impaired he appeared at any recent doctor's appts. It doesn't matter if the ME said the disease was "advanced" yesterday. She doesn't know either how impaired he was in daily life.
All she knows is that his brain had lots of Alzheimer's abnormalities. But with all kinds of brain damage/disease, not just Alzheimer's, actual impairment doesn't necessarily correlate with degree of brain damage. More education has long been known as a moderator. While Gene didn't finish college he wasn't a high school dropout. And being an actor required good verbal and memory skills. Some studies suggest being male with good social support predicts a better quality of life with Alzheimer's too.
These results reinforce the importance of gender, psychological morbidity, social support, and functionality, with special emphasis on the role of spirituality, regarding intervention programs that promote QOL, in patients with mild AD.
pubmed.ncbi.nlm.nih.gov
While the couple was reclusive recently, I don't think there is any doubt Gene felt fully supported by Betsy. And I don't know that she took him "so far off the grid with zero check ins or regulations." We don't know that SHE decided in the should move to Santa Fe shortly after they married. Certainly 35 years ago it's unlikely he had signs of Alzheimer's! And he was active in Santa Fe for many years as she was.
We don't know there were zero check-ins. I'm not sure what you mean by "regulations" but all Alzheimer's patients and their families don't want an institutional life or a home life filled with strangers paid by the hour. Besides, patients often decline when moved to a new setting or there are home changes. And at some point, patients and their families have a right to self-determination.
It may be Gene would have lived longer in an institutional setting but maybe he would have died sooner. It's hard to say about Betsy too. She probably wouldn't have caught that rodent virus living in a mansion in the LA area. But without having Gene to care for every day she might have died early.
Regardless, the case IS sad, but how long would we have expected Gene to live? He was 95! With a pacemaker. And with an angioplasty in 1990. And with a possible head trauma in the 1980s when a car hit him when he was bicycling in the Florida Keys. He apparently was not dehydrated when he died so he must have done some self-care if Betsy did die days before he did.
MOO