nhmemorymaker
Well-Known Member
- Joined
- Feb 9, 2020
- Messages
- 7,628
- Reaction score
- 55,359
For covid long haulers, the pandemic will not end when it ends. This is a big problem squarely facing us. Out of estimated 40 million Americans suffering fron long covid, how many will become disabled for life? Too scary to think about.
Long-haul COVID: How grassroots online movement Survivor Corps helps those facing lingering symptoms
Filmmaker Nick Guthe, whose wife, Heidi Ferrer, died by suicide after months of debilitating COVID symptoms, is an advisor to Survivor Corps.
...
As much light and hope as she offered others, she fell into a darkness she couldn't recover from. Three months ago, the 50-year-old Ferrer took her own life, after a 13-month-battle with long-haul COVID.
"I think she felt she was only going to get worse," Guthe said.
Her symptoms were so severe, said Guthe, her life changed dramatically. Debilitating pain in her feet put an end to her daily 90 minute walks, gastrointestinal issues, extreme exhaustion and brain fog followed. But Guthe said it was the sudden neurological tremors that kept her from sleeping that were the worst. Ferrer wanted them documented; she is seen experiencing the tremors in a home video.
"She basically had no quality at the end of her life," Guthe said.
...
"When I heard the news about Heidi's death, a part of me broke," said Survivor Corps founder Diana Berrent. "I mean, she was one of our members."
Berrent estimates some 40 million Americans are affected by the lingering and varied symptoms of long COVID.
Survivor Corps has a Facebook page with 170,000 members sharing personal stories, and a website with comprehensive information and resources on long COVID.
...
Thank you SO much for finding/posting this. I have three close friends with long haul symptoms, so I worry about it for them a lot. OMG...not like this case of Heidi... which is just so unbearable to read... but I do feel we are all goiong to know folks who suffer from long haul..